Discussion Forums > Diet, Nutrition and Supplements
SUPPLEMENTS FOR CHILDREN
maha:
Hi
My doc and hema refuses to prescribe any calcium for Hassan. They just say at the moment he does`nt require it. Infact my hema told us to even stop folic acid (I have`nt followed his advise though). After reading so many posts on supplements I have purchased osteocare. The dosage for his age is 5ml twice a day( 2 1/2 years). Should I follow the reccomended dose or can I just give him a maintainence dose of 5ml/day. Also what should be the dose of vit E for his age. Is it necessery to let the doc know that he is taking osteocare.
take care
maha
Manal:
Oh my God Maha, what is their point !!!!!!!!!!!
Folic acid should be taken even by minors. It is very safe and even taken in pregnanacy. It is water soluble and this mean that any extra of it in the body is excreted in the urine. It helps in prolonging the life of the red blood cells
As for the calcium ,every thal neeeds calcium and when i showed the Osteocare to my Hematologist, she said it was a super combination and also recommended the chewable one cause it has trace elements like selinium. She told me to keep on giving it to him forever as it has an excellent combination. If i were you i will insist that my child takes calcium
As for the Vitamin E dose
http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/
--- Quote ---Children 1-3 years 200 mg (300 IU)
--- End quote ---
My son takes 400mg alternating days, but it is important to take it from a natural source rather than a synthysised source as long that it will be taken permenatly
Maha by the way, are you giving Hassan L-Carnitine???
manal
maha:
Hi Manal
Initially the doc had prescribed folic acid for Hassan. Once on a routine visit I had asked the doc if I had to increase the dosage of folic acid he just said if he is on a hypertransfusion regimen he does`nt need any kind of supplements. All he needed was blood at the right time and when the time comes proper chelation. At the moment I give him folic acid 1mg , and a vitamin supplement named Mixavit. His dose of 2.5ml contains Vit A - 2500 IU, vit D - 250 IU, vit B1 - 2.5mg, vit B2 - 1mg, vit B6 - 3mg, vit B12- 3mcg, Ascorbic acid 25mg and nicotinamide10mg. I just started to give him osteocare 5ml/day. I will look out for the chewables once I finish this bottle. He gives me a hard time taking it. Is there any vitamin supplement that includes vit E ? No, I do not give him L-Carnitine.
Manal:
Maha
I think that even if he is transfusing, he still needs the function for which folic acid is taken, that is prolonging the life of the red blood cell. No contradiction. Whether a thal patient is transfusion dependent or not, the body is under a big stress and always in need for vitamins and minerals.
I learned in Singapore ( though it is a different example but it is the same idea) that whether you transfuse or not or whether you live with high HB due to transfusion or with low Hb . Osteoproseis is one of the challenges that thals face because there are other multifactors that leads to it, so how can a thal ignore taking calcium and this challenage exists. Though it is not only calcium but we can not just ignore taking it.
Vitamin E is also found in Kiddie Pharmaton brand
http://www.egydoc.com/sites/egydoc.com/main/dbase.asp?code=5589
--- Quote ---Panthenol 10 mg
Calcium 130mg
Lysine Hydrochloride 300mg
Nicotinamide 20mg
Phosphorus Phosphate 200mg
Vit B1 (Thiamine) Hydrochloride 3mg
Vit B2 (Riboflavine) 3.5mg
Vit B6 (Pyridoxine HCl) 6mg
Vit D3 (Cholecalciferol) 600 I.U
Vit.E 15mg
--- End quote ---
But this is the one manufactured n Egypt under lisence and has no Vitamin C or iron. There are other kinds of the same brand that has iron and vitamin C too.
I think Maha that you should give Hassan L-carnitine as mentioned in the second post of this same thread for its important functions to all thal in addition to being an antioxidant
--- Quote ---Please consider adding L-Carnitine. It has very important functions
1- Decreases Apoptosis
2- Maintaing healthy muscles and the most important heart muscle ( that is why the only side effect for taking it is a little bit increased activity of children i.e becoming more naughty )
3- Prolonging the life of red blood cell so it can increase the gap between transfusions
4- In some intermedias, it increases the Hb
In my opinion best way to take it is in drops as it is tasty and easy to administer. It is also available in tablets. It has no side effects at all as each of our body cells has L-Carnitine and also pregnant women can take it safely. It should be taken by adult thal too
In Singapore conference, it was of great interest to cardiologists
The dosage is according to body weight twice a day. When first taken, it is everyday for a whole month, then later on twice a day , 5 days per week
--- End quote ---
manal
maha:
Hi Manal
Is there any official document or something , relating to the use of L-Carnitine on thalassemia patients. Maybe my doc could understand better if it is on paper.
takecare
maha
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