Discussion Forums > Thalassemia Major
BAD NEWS
aysam:
aysams test results today are very high his ALT is 240
last weel 134
his liver
is enlarged and he has phenoumia and his HB is 10 he was only transfussed 11 days ago
please why ?
they have told me to stop exjade his ferritin is 4200 help me
is this the iron causeing it or the exjade they dont know?
they have no reson they tell me nothing i am so worried his lier is large he ispale i have been telling you guys how pale he has been latley his asparate txaminase is 82 last week 80 everything almost is double
and you know wat they said
dont panic
aysam cant use desfral becuse of teh bloating stomach and they think exjade is the casue so now they have stoped me on everything
i am so worried somene help :wah
aysam:
ANDY ?
aysam:
i am so so so so afraid my son one day will be in the
in memory of
if we dont do something fast
and you know i have a bad feeling about himi dont knwo why i just feel like this
today i felt something was wrong and look the results i was right
what can i do
aysam:
is there anyone here i need somene to talk to and explaine what is happeing and why ?
i am going tpo have a break down
Andy Battaglia:
Mariam,
Did Smurfette give you any information about where else you can take Asyam in Sydney? Has IV desferal been tried?
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