Discussion Forums > Thalassemia Major

My new born baby has possible Thal major

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avasmom:
Hi,
This is Avasmom (actually her Grandma) Ava's mom is at home.  I have read quite a bit about Thal major.  This site has been a blessing.  It is nice to know there are people you can talk too.  My granddaughter was diagnosed with Thal Major last Tuesday.  Tomorrow my Granddaughter, her mom and I are going to Childrens Memorial in Chicago for a second opinion.  No the outcome will be the same, but Andy said that Childrens is one of the best hospitals for children with Thal Major and even recommended a Dr. for us.  Thanks to Sharmains input about Genotyping and phenotyping testing before transfusions, I have put together a list of questions to ask the hemotologist tomorrow.  Ava is 2 months old and is a beautiful baby.  I have come to accept that my granddaughter has Thal Major and my daughter and i will make sure that she is compliant with everything that she has to do.  My daughter and I will know more tomorrow after our visit.  I will let you know how everything goes.  Thanks to people like Sharmain and Andy, I feel better.

I will keep your baby in my prayers along with Ava, and Look forward to speaking with you again.

Dianne

nanuaru:
Hi gmeena,
   Pl do see my reply to avasmom under heading nanuaru.Be strong and help your child to grow normally
             Keep POsting       
                                          father of  cutiepie

nice friend:
Hi Gmeena ,
here is the link below of that post which ananu has mentioned above , soo please check it ...

http://www.thalassemiapatientsandfriends.com/index.php?topic=2230.msg19914#msg19914

Take Care
Umair

ocwoodmanp:
I know I am replying late.  We just found out about this board and joined last week (I think). 

We take our 2 1/2 year old daughter to Children's Hospital of Philadelphia.  She started her transfusions in November and we are on a monthly schedule.  They have, from what we have been through, excellent care. 

Dori:
Andy (or any other member), blood transfusions do not start immediately after the thal baby is born?

I have had my (exchange) blood transfusion in 24 hours, so this difference confuse me a bit.
(But that stupid male nurse destroyed my own blood so it took 1.5 -2  years to find out what I had (pyruvate kinase deficiency))

Meena, welcome to the forum. I hope you find here the right information and do feel this as an informative home :)

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