Discussion Forums > Thalassemia Major

From Hospital

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Zaini:
Good luck with the next test,if she goes to sick kids for transfusion,why don't you shift her there,as the doctors there must be familiar with her history and it might help controlling the situation.

Zaini.

Canadian_Family:
Hi Zaini,

We tried sick kids first, there was no bed available at that time and our local hospital found the bed in McMaster, we had no choice because we didn't want to wait. I have already left a message with the Sick Kids to contact McMaster with details of her results.

Thanks.

Manal:
Canadian Family
wishing you a really good luck. knowing a diagnosis is much better now, hope the test goes well and everything will be under control, i am still praying :hugfriend

manal

Sharmin:
Canadian Family,

I had just assumed that she was at Sick Kids, but lets hope that once the doctors at McMaster get her information from her hematologist they will understand how to best treat her. 

Are her mineral levels low because of Exjade?  How is her hg holding up through all of this?  I hope she is able to eat and drink more today.  Let us know how her tests go.

All the best,

Sharmin

Canadian_Family:
Hi,

The latest blood test shows her blood PH is high, phosphate is 0.26 (s/b 2.5-3) and her Bi-carb (no idea what it is) is 19, which is also low. The inital blood culture report shows staphylococcus Areus bacteria, but still doctors are waiting for final blood culture report. Canadian Disease Control have been informed as she must have contact with something with Steph bacteria and they are launching their investigation. I am doubtful at the Learna (the computer school she goes to).

Also, the fluids absorption in not very good, she is retaining fluid under the skin, doctor has shown concern for that as well. McMaster is contacting Sick Kids. Prayers are required.

Thanks.

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