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Multivitamins for thal major children

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Manal:
Thanks Andy, i am really happy that you found this important study, its a break through :biggrin

manal

aryaka:
Hi,
My son is 14 months now
He uses about 700ml of formular milk per day and cereal, meat, fruit, do they supply enough vitamins? does he need to be applied more Vitamins? and what kind of them?
Aryaka

Sharmin:
Aryaka,

Multivitamins are good for all children, but for thalassemia children they are essential in order to maintain good health.  The type and dosage of vitamins that are recommended depends on your son's diagnosis.  Is he thal minor? intermedia or major?  We can guide you accordingly. 

Take good care,

Sharmin

aryaka:
Sharmin,
As my son electromemphis Hemoglobin's test, my doctor just said he is in Intermediate to Major beta Thal, watch him carefully, do blood test every 6 month...and do not give any prescription.
I did post his test result on this site and Andy said he is in Minor Thal...I'm wondering which kind of situation of my son...
This is our test result, could you give me more guide...
Our son:
Hematologie:
WBC: 8.31 G/l {5.0-13.0}
RBC: 5.65 T/l {4.0 - 5.5}
Hbb: 12.8 g/dL {11.5-14.5}
HCT: 38.4% {37-45}
MCV: 68 fL {78-92}
MCHC: 33.3 g/dL {30.0-36.0}
MCH: 22.7 pg {28-32}
Protein C-reactive: 1.7 mg/l
Ferritine: 72.4 ng/ml {7.0-282.0}
Hb electrophoresis:
HbH: 0
Hb Bart: 0
HbA: 77.0%
HbF: 18.8%
HbE: 0
HbA2: 4.2%
HbS: 0
HbD:0
My husband's result:
Ferritine: 443 ng/mL {30-400}
Hgb: 14.3
MCV: 72.7
MCH: 25.7
Hb electrophoresis:
HbF: 6.1%
HbA2: 5.2%
HbA: 88.7%
My result:
Hgb: 12.1
MCV: 75.2
MCH: 25.5
Ferritine: 20
HbF: 0.4
HbA2: 2.8
HbA: 96.8
Thanks so much

Andy Battaglia:
Aryaka,

The child is not thal major. A major would be transfusing by now. It takes one thalassemia gene from each parent for a child to have beta thalassemia. In a previous post, you stated that your test shows no beta minor for yourself and minor for your husband. The HbA level is far too high for major or intermedia and the HbA2 is consistent with thal minor. The HbF is high for a minor but high HbF can also be related to other conditions like carrier for hereditary persistence of fetal hemoglobin, but it would be much higher in major.

Is your son growing normally? Is he healthy? Is there anything that would suggest that he isn't  developing normally? I am wondering why the doctor would make a diagnosis of major or intermedia when the child's hemoglobin level is normal and the test results only indicate thal minor.

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