Discussion Forums > Thalassemia Major

My Baby is getting first transfusion tommorow

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hopefulmommy:
Hi Meena,

this is a good list of food very high on iron, you can use this for reference.

While selecting your  food, you can avoid/minimize these.

http://www.thalassemia.com/iron_foods.html

Best wishes to your baby,may everything be well with your baby.

Manal:
Meena, good luck and please update us

manal

momofShreyas:
Hello All,
My baby had the blood transfusion on friday. He did not develop any fever, but developed rashes all over his body. Today his rashes are reducing but he is appearing very weak, spitting up, not sleeping and he appears to be losing his color. This is making me worried. Is it normal? He is 10 1/2weeks old.

Thanks
Meena

Andy Battaglia:
Hi Meena,

The rash is typical after transfusion and often benadryl will be given during transfusions to counter the allergic reaction. All transfusion reactions should be immediately reported to your doctor. I do not want to speculate on the pale skin and it may even be not related to the transfusion but you should report this to your doctor.

You do not need to watch iron intake while breastfeeding. This could lead to anemia in yourself and has to be avoided. Breast milk contains very little iron (it is absorbed at a very high rate, 50% in the baby, so there is no need for the your body to load more iron into the milk) and will be no danger to your baby. It is far more important that you eat a good balanced diet so that the baby is getting all the necessary nutrients. There is nothing better than breast milk for any baby so please continue to breast feed for as long as possible.

Sharmin:
Dear Meena,

My son had a rash after his first transfusion as well - he was 3 months at the time.  His rash was due to the hospital linen and it remained for quite some time afterward.  We then started to keep him in his own clothes during the transfusion and we took in our own blanets and pillows, this prevented the rash. 

The rash may also be due to transfusion so do notify your doctor.  Some children vomit after a transfusion and others also develop headaces.  My son does not have these particular reactions, but a few other children that our transfused at our hospital do.  Children's color can change often depending on how they are feeling, if they are warm, cold, hungry etc.  My son often turns pink after a meal and when he is warm. 

The best place to check for color is the mouth, if the tongue and lips are red then the hg is usually good - but if the inside of the mouth is pale then the hg is low.  It is a good idea to note your observations and share them with your doctor.  Did you have the phenotype of genotype testing done prior to the transfusion?  Was a leukocyte filter used? 

As Andy has said, please keep your nutrition up because it will give your child an early advantage if you are eating nutritious food and breastfeeding him.  Also, you need to keep your own nutrition up.

Please keep us posted,

Sharmin

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