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for everyone from aysam

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Manal:
Hey Mariam,

I am so happy to hear from you and so releaved to know that the ferritin is starting to decrease. You are doing an excellent job my friend, keep faith and as Andy said keep mointering the liver and kidney functions and i am sure that everything will be fine inshallah.

Keep us updated and greeting to you and all the family :hugfriend :hugfriend

manal

Sharmin:
Very nice to hear from you Mariam,

Have a very Merry Christmas and I hope that you feel better very soon.  I am also glad to hear that Aysam's ferritin levels have begun to decline.  Were you able to do the Ferriscan for him? 

Best Wishes,

Sharmin

Dori:
Hi, I am also very glad to hear that it seems that your son's ferritine is dropping. Btw I have been a guinea pig for teaching to poke... I know it's hard to tell the hospital you don't want. I cant give you any advice, but i hope they aren't very mean to your child and you.

Merry Christmas,

Dore

aysam:
HI EVERYONE AND I WISH YOU ALLA MERRY CHRISTMAS AND A HAPPY NEW YEAR HOPEFULLY 2009 WILL BE A CURE FOR THALASSEMIA  :rolleyes


this is what i wish for a magic 
drug taken once and you will be cured



it is possible i suppose never know drems can come true

anyways can anyone explaine the blood results for me ?


love mariam & aysam

Andy Battaglia:
Hi Mariam,

The liver test levels are high but not high enough to stop Exjade at this point. The doctors will continue to monitor these levels. For now, there is no real danger from the levels being as high as they are. They are still far below a dangerous stage. I was reading an earlier post, where calcium, magnesium and phosphorus levels were mentioned. These were all low and low enough to cause some concern. We have recently heard from Canadian Family about their daughter's problems with low calcium and other minerals and the effect on her bones, and this can be quite serious and cause very weak bones, so this is something that does need to be addressed. Raising these levels will probably also have some positive effect on the liver levels and may reduce the hemolysis that is causing the high bilirubin level. Low mineral levels are both preventable and correctable. It is essential that you have him on a daily supplement. Look for something like this  http://www.vitabiotics.com/osteocare/osteocare_chew_formula.aspx?ID=103&sm=9

If you want to learn more about what can easily happen with thal children who are fussy eaters and don't take a supplement, read the thread at http://www.thalassemiapatientsandfriends.com/index.php?topic=2347.msg20795#msg20795

Also, please try to get him to eat nutritious foods. It can be really hard to get kids to eat good foods, but with thal kids, extra efforts have to be made to get them to eat right.

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