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Effect of L-carnitine on the physical fitness of thalassemic patients.

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Andy Battaglia:
L-carnitine would not affect chelators. Why does the doctor want to use a PIC line for one week of desferal? Unless your veins are in bad shape, it seems an unnecessary intrusion. Your liver iron is high and 24/7 desferal is the answer, but IV would be preferrable for short term.

tyson:
My veins aret bad, cannula only last for 3 days or so. ive had 4 porta-caths in the past, 1st porta cath was a baby one since i was 2 so they replaced it with bigger ones.ever since the new ones they had either flipped,tube poped out of my skin on my neck and or infected. subcuts have scarred my for life and i refuse to move back to that stone age. ive had a desferal bottle through my port when i still had it, the desferal was one week on and one week off. then i moved to ferriprox but my dosage was 3 tablets 3 times a day and i always forget to take the mid day dose so that brought my ferritin up. i use to have a ferritin level of 200 a couple of years back.   well i most probably have a couple of 24/7 intreveinus spread out during the year hopfully that will help bring down my ferritin. since my ferritin is 1400 how many weeks of 24/7 chelation should bring it down to 500 or so.

sorry this is posted in the wong section of the forum i just got carried away.

nice friend:
Hi  Tyson ,
 :welcomewagon to the family , i hope you wil find this community realy helping, caring and ecnouraging, as it is  ... feel free to ask or share anything you want to share ...i hope you will get a good response and answer of our concerns/questions,  its your own forum so dont hesitate to ask wat ever you wana know about ...

Best Regards
TAke Care
Umair

Manal:

--- Quote ---Dear Manal,

is there any place I can find this study by dr. El Beshlawi? I told that to my hemo and she asked if I could pass her this study because she had read a study by dr.El Beshlawi that praised the advantages of L-Carnitine. According to my hemo, who has also studied the subject, carnitine lessens the intervals between transfusions as well as prolongs the survival of red cells.
She was surprised by what I told her about only 5 days a week and asked for this study, if there is one.

Lena.
--- End quote ---

Lena

During my visit this month to Dr. El Beshlawy, she told me that she did not yet have this study published but Dr. George Attwa has done the same study and his findings about the dosage were mentioned in the ASH (American Society of Hematology) in 2006.

I will search for this abstract and let you know

manal

Raul:
Hello...

I'm glad to hear the effects of L-carnitine to thal patients..but forgive me if i'm wrong,i tried to look for this supplement yesterday at the pharmacy but what i found out is L-carnitine is meant for weight loss supplement.furthermore,there's only one brand i found.can anyone suggest what brand should i look for?

Looking forward for your help!


Mel(mother to RAUL)

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