Discussion Forums > General Chatter
Appointment in February
Manal:
--- Quote ---his thighs have only muscle and no fat therefore we can't put it on his legs. His arms are too skinny, and he won't let us put it on his hips. I am praying that he will get a break from the needles too.
--- End quote ---
I just pray that all the children of the world and especially children will have an alternative for desferal and have a break from the needles, Ameen :pray :pray :pray :pray :pray :pray
manal
nice friend:
:pray AMEEN :pray
Sharmin:
Thank you very much my friends - I love you all :grouphug
My prayers are the same - for all thals to be well without needles.
Sharmin
Sharmin:
I have been hearing that the other patients in the trial are continuing to do well and are being allowed to get off of the desferal - how wonderful it would be to not have to put desferal on anymore! Dr. Vichinsky told us that the ultimate goal is to get rid of desferal - but another doctor said that eventually we will use mostly exjade but desferal 2 or 3 times a week....I wonder what they will decide when we get there. I think that if his iron levels are below 600 we can get off of desferal, however I have also heard that one whose iron levels are below 1000 should not be using desferal.... ??? ??? ???
Sharmin
Zaini:
Isn't level of 1000 enough to get rid of desferal? :-\ Exjade will remove the rest?
Zaini.
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