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Appointment in February

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Andy Battaglia:
This can also be downloaded in our documents section at http://www.thalassemiapatientsandfriends.com/index.php?topic=1762.msg14639#msg14639

Dori:
Ok, shall I delete those posts?

Andy Battaglia:
Nope. Anywhere people can find the link is helpful.

Andy Battaglia:
Actually, I hope people mention this document often and link to it. These guidelines should be seen by every doctor who treats thalassemia, so please do mention Standards of Care Guidelines for Thalassemia often.

Sharmin:
The list of questions is below.  I will do my best to get answers. 

1. is fetal hg less efficient for growing children than adult hg?

2. do fetal hg inducers trigger unwanted functions?

3. L-carnitine - what is the opinion on its usage

4. pulmonary hypertension - who is at risk, how to manage risk - NO inducers?  L-carnitine, citrilline

5. vitamin C with exjade, vitamin C when not using desferal

6. what is treatment for post splenectomy non transfusing alpha/beta thals? anything other than anticoagulants required?

7. have exjade/L1 been used in combination? 

8. magnesium, bilirubin and gall bladder stones

9. Patients with PKU

Sharmin

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