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Appointment in February

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Manal:
Thanks dear for everything. You are doing an excellent job. Thanks for helping us all

manal

Sharmin:
I had to take a long walk to absorb everything that we learned today. 

One thing I want to stress is that everyone should have their vitamin D tested - and be sure to take a good vitamin D supplement.  Little A was extremely deficient last spring and the doctors here want him on mega doses to make up for the deficiency.

Secondly, we have to do rituximab again this coming summer.  It was a nightmare last year, but we need to repeat the course once again because Little A is still receiving too much blood.  This has been spinning around in my head since our appt.  Ultimately, we have to do what is best for him - so that his tx requirement and chelation can be reduced. 

Thank you all for your support.  Thank god that Andy lead us down this path before our child sustained any damage from the iron.  I am really glad that his iron levels are reduced at this time and that we have many options.  We are in a much better position than we were 6 months ago. 

I am realizing that the information which we are receiving here is lifesaving - as is the support  :hugfriend :hugfriend

Sharmin

Andy Battaglia:
Vitamin D is all the rage these days and for good reason. Our bodies are based on a system that assumed regular extended exposure to sunlight and most of us no longer get this. In addition, there may be a more hazardous situation now in terms of lengthy exposure to the sun due to destruction of the ozone layer which helps protects from the sun's damage. So, vitamin D supplementation often becomes necessary, especially for those living in climates with long periods of little sun. I feel great in the summer time when I can get sun but during the winter months I am a wreck if I don't take vitamin D daily. Its affect is noticeable almost immediately. Thalassemics have a great demand for vitamin D and just as with vitamin E, as more thals are being tested, an extremely high rate of severe deficiency is being found. This can be corrected and large doses are required, but it will work and it will greatly improve bone health along with just about every other aspect of health. The simplest thing our body needs and it has taken science until very recently to understand how very important the sunshine vitamin really is.

Zaini:

--- Quote ---I am realizing that the information which we are receiving here is lifesaving - as is the support
--- End quote ---

I couldn't agree more.


--- Quote --- Secondly, we have to do rituximab again this coming summer.  It was a nightmare last year, but we need to repeat the course once again because Little A is still receiving too much blood.
--- End quote ---

Does this mean antibodies are still active ???

Best of luck Sharmin,you are doing your best,rest is up to God.

My prayers are with you.

Zaini.

Dori:
 :congrats with the iron thing &  :goodluck for today!!!!

Adíos, Dore
p.s. dont worry I will start an own topic.

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