Discussion Forums > Announcements
1st Pan-Middle Eastern Conference on Haemoglobinopathies ..May 2009, Syria
Manal:
I got to know from our association that it will be held on the 1st and 2nd of May. Schedual is not yet announced. I am now investigating the possibility of going there or not, i will let you know.
They are again announcing about sponsorships, check the link
http://www.thalassaemia.org.cy/pan_me.html
manal
Sharmin:
Manal,
Let us know if you will be there, we always learn so much from you when you attend these conferences.
Sharmin
aysam:
hi manal hi everyone
long time i havent posted i have been so busy
i have been looking after four kids and my 5 the kids i am a carer for they have no famaly so you can all imajine that i have been to busy 9 kids very hard to go online
aysam, well i was told last transfussion that his iron hasnt went down much they said it has gone down but much like 500 grams only he iron is still over 3000 i am going hopefully in april to lebaonon its final i just couldnt get up and leave as i dont have a job there and many other issuies i needed to make sure if i am going to lebaonon it will be for a long time this is why i didnt go yet remmeber in austrlalia everything is for freein lebaonon it will cost $5000 month just for exjade and $1000 for treatment so i needed to make sure i am able to do this now i think i am ready in april and i will stay in lebaonon becuse they just dont knowaysams couler has changed he looks like drker know like i dont know pale ans dark i think its due to his iron his liver test are playing up they go high then low i dont know if this is going to affect him long term i dont know if any that is happeing tp aysam will affect long term i hope not i read about the syria confrence manal whats all this about ?
worth going ?
Manal:
Hi Mariam, i really missed talking to you :hugfriend
I wish you all the luck in your trip and hope tht all Aysam issues will be clearer there.
As for the conderence, i don't have the details or the programe now, but i will update you once i have them
Big hug for you and the kids :hugfriend
manal
Dori:
--- Quote from: aysam on January 24, 2009, 11:19:47 PM ---hi manal hi everyone
long time i havent posted i have been so busy
i have been looking after four kids and my 5 the kids i am a carer for they have no famaly so you can all imajine that i have been to busy 9 kids very hard to go online
aysam, well i was told last transfussion that his iron hasnt went down much they said it has gone down but much like 500 grams only he iron is still over 3000 i am going hopefully in april to lebaonon its final i just couldnt get up and leave as i dont have a job there and many other issuies i needed to make sure if i am going to lebaonon it will be for a long time this is why i didnt go yet remmeber in austrlalia everything is for freein lebaonon it will cost $5000 month just for exjade and $1000 for treatment so i needed to make sure i am able to do this now i think i am ready in april and i will stay in lebaonon becuse they just dont knowaysams couler has changed he looks like drker know like i dont know pale ans dark i think its due to his iron his liver test are playing up they go high then low i dont know if this is going to affect him long term i dont know if any that is happeing tp aysam will affect long term i hope not i read about the syria confrence manal whats all this about ? worth going ?
--- End quote ---
Wauwie, it sounds that you really do a good job. Nine children, how can you handle that?! :) Between which age are they? Is Aysam your biological child? I hope they all doing well and Aysam feel soon better. Trust me, I know how annoying it can be if the Fe stays high. Lebanon most be a beautiful country and I have heard a lot of good stories about that doc. I hope you will find a way to deal with the high prices of the meds. Take care and I wish you all the best from the Netherlands, Dore :flowers :flowers :flowers
p.s. means the name Aysam something? I like the name :)
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