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Latest on Ninth Cooley's Cooley's Anemia Symposium Registration opens soon!!
Sharmin:
http://www.nyas.org/events/eventDetail.asp?eventID=13345&date=10/21/2009%208:00:00%20AM
--- Quote ---Ninth Cooley's Anemia Symposium
Sponsored by the Cooley's Anemia Foundation and the New York Academy of Sciences
Registration opening soon.
Thanks to scientific advances, individuals with thalassemia—a group of genetic blood disorders which includes Cooley's Anemia—are now living into their 40's and 50's. Not only are individuals living longer, but their quality of life has increased. Scientifi c and clinical advancements have resulted in new iron-chelating drugs, early detection of organ failure, an understanding of adult complications associated with living with thalassemia (osteoporosis, heart failure, growth hormone defi ciency, pulmonary hypertension, and in fertility) and promising progress towards the ultimate magic bullet—a cure in the form of bone marrow and cord blood transplants, or gene therapy.
The symposium will integrate basic science and clinical research so that both scientists and clinicians can develop a mutual understanding of recent progress in thalassemia.
Scientific Organizing Committee:
Elliott Vichinsky, MD
Director, Hematology/Oncology
Children's Hospital and Research Center in Oakland, CA
Ellis Neufeld, MD, PhD
Associate Chief, Division of Hematology/Oncology
Children's Hospital Boston
Plenary Sessions on:
Iron Regulation and Metabolism
Gene Regulation and Therapy
Iron Overload and Chelation Therapy
Iron Imaging
New Advances in Stem Cell
Transplantation
New Therapy For Hemoglobin F
Cardiac Dysfunction
Nutrition and Antioxidant Therapies
Clinical Syndromes in Thalassemia and Disease Severity
The Adult Thalassemia Patient
For complete agenda, please click here.
CALL FOR ABSTRACTS
Deadline for abstract submission is Friday, August 14, 2009. For complete abstract instructions, please e-mail: cooleys@nyas.org. Type the words "Abstract Information" in the subject line - no need to type a message. Instructions will be forwarded automatically. Any questions, please call 212.298.8681.
Travel Fellowships will be available for this meeting. Further information will be available shortly.
Dissemination Material
Listen to the eBriefing from the last Cooley's symposium at www.nyas.org/Cooleys
Read publications from our previous Cooley's Symposia at www.nyas.org/CooleysAnnals
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This sounds really exciting!!
Sharmin
Sharmin:
--- Quote ---Nutrition and Antioxidant Therapies
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Please note the nutrition and antioxidant therapy that Dr. Vichinsky told us about - and that Andy has been talking about.
Sharmin
Dori:
It is only for thal, right? Never mind, I would never be able to attend this.
Sharmin:
Dore,
I think that the information at this symposium would benefit you because your treatment is the same as that for thalassemia. Transfusion and chelation are as relevant for you as they are for a thal. I am hoping to attend this and if I am able to I will try to get as much information for our friends here as possible. A few others have mentioned that they will be in attendance and hopefully together we can put together some information for everyone.
Sharmin
Dori:
I am planned to go back to the States in summer, but I do not think i make a chance to attend this conference.
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