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Pakistan May Have 70,000 People with Thalassemia

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Dori:
January 26, 2009 - According to a recent news article, there may be more than 70,000 people with thalassemia in Pakistan.

An article published today in the "International News" quotes Al-Mustafa Thalassemia Unit Project Director Munaf Aliana as estimating the country's thalassemia population at more than 70,000, with 6,000 children with thalassemia born annually.

It is a very small message. Maybe there was a better topic to publish this?

A few years ago I heard how many thals there may be in Iran. I startled so badly that I forgot it over the years. Has someone an idea how much thals Iran may have?

Dore

Source: http://www.cooleysanemia.org/index.php?option=com_content&view=article&id=90:pakistan-may-have-70000-people-with-thalassemia&catid=1:latest-news

nice friend:

--- Quote ---Pakistan May Have 70,000 People with Thalassemia
--- End quote ---
it is something for that everyone has to worry about ... thats why, i stress more on awareness than the anything else ...

Umair

Andy Battaglia:
6% of Pakistan's population carry thalassemia trait. 3% of Indians carry the trait (that's 40 million carriers). It is estimated that 8-10,000 majors are born in India every year and over 80% get no care. I imagine most in Pakistan, Thailand and Indonesia also get no care. It's a harsh world and we have a lot of work to do to make it a fair one.

Kathy11:

--- Quote from: Andy on January 26, 2009, 10:15:56 PM ---It is estimated that 8-10,000 majors are born in India every year and over 80% get no care. I imagine most in Pakistan, Thailand and Indonesia also get no care.
--- End quote ---

This is very sad to me ,when I think of how much money is spent  on the defence force to create wars,
Why dont the responsible   government body intervene ??? ??? ???

This is where groups like us can bring forward awareness of the above issues and the unfairness of it all

We need to try.
Kathy

Zaini:
I don't know the statistics,but yes that must be true,there are many small organizations who are trying to give treatment to these kids,but i don't know about any major or even small foundation who is trying to spread awareness to prevent it in the first place.
Especially rural areas need awareness very badly,at our hospital i have seen a lady who comes from Badeen,which is in Interior Sindh,with four thalassemic kids,God knows how she manages it every three weeks.

While in urban areas people need to be educated about living with thalassemia,they need to know that it's not a curse,that your child can live a fairly normal life if you get the right treatment.

Zaini.

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