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frustrated
Sharmin:
Umair and Zaini, thank you so much for your wishes.
Yesterday, before his transfusion his ferritin was 1249 - which is really good. I hope that the additional transfusion yesterday did not increase it too much. We are going to keep chelating him everyday as much as possible in order to get it down further. I hope that the SQUID reveals that his iron levels are low. At the end of the day, even if his transfusion requirement remains a little high - meaning that he needs to transfuse every three weeks - the important thing is to keep the iron levels down. I hope that we have gained control over the iron now. Of course I will post the result from our hotel as soon as we get the results!
His hemoglobin today was 146 so I am hopeful that this transfusion will last him for a while.
Andy,
Before yesterday's tx his doctor did some tests to determine whether he is hemolyzing excessively, below are the results:
hemoglobin Monday was 108, hemoglobin on Wednesday morning was 103
Albumin 34 (normal range)
direct bilirubin 6 (normal range)
total bilirubin 26 (high normal is 19)
ferritin 1249
Do these results tell us anything? It seems to me that the hg drop was small - and the bilirubin and albumin levels were not significantly elevated suggesting that there wasn't any serious hemolysis going on. Do you agree? Thank you,
Sharmin
Andy Battaglia:
Sharmin,
Do you have previous bilirubin test results for comparison?
Sharmin:
Andy,
I don't have previous bilirubin results at this time. If the hospital has not thinned his chart then I will be able to look it up on Tuesday. His eyes have been red since the 2nd tx, but his hg the day after his tx was 146. He will have another cbc on Tuesday before he gets his ivig. He will also have an echo that morning - and I am praying that the results will be good. This time he has been transfused before doing this test. When he was tested last spring his hg was very low.
I am praying that too much hemolysis is not taking place. Having so many tests planned in the next week has me nervous, especially because of the recent drop in hg. I hope that everything goes well, I don't know how much more my nerves can take.
In this week we will have an echo, SQUID and T2* - along with numerous blood tests. Our last visit opened our eyes to how many things needed to change in respect to his transfusions and chelation. He was transfusing too much and his iron levels were too high. I am now hoping that these changes will yield positive results.
Do these results (hg, albumin, bilirubin) suggest anything?
Thank you Andy,
Sharmin
Andy Battaglia:
Sharmin,
The only result that raises any question is the bilirubin, but if it is not significantly different from previous tests, it would be of no concern. It is a bit high but that is fairly normal in thals.
Zaini:
Sharmin,
I hope everything will be ok,please be strong,i wish you the very best. :hugfriend
Zaini.
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