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Dore's appt
Dori:
My memories about my friend Nazli
She was also blind, because things went wrong during her birth (not enough oxygen). :( But she was a very intelligent girl. She lived with her little sister by a fosterfamily. The foster mother brought them always to the room, asked the nurse to call her when they were finished and went back home. I mean, how can you leave before those children have their infusion? The woman who always did it, was so bad in her job. She always poked you several times and then she would call help in from a real doctor who gave you the infusion in seconds. The boy of your small group told her after some time that she was not allowed anymore to poke him. It was a fight, but he won. :biggrin
For me there was a special protocol which said that only a real doctor must poke me, but.... I still remember that I turn the page of the local newspaper by my grandmother and I immediately saw her funeral notices. I lost the Dutch funeral notice over the years, but still have the turkish one. She was Turkish and her funeral was held in Turkey. I still have to ask a Turkish frined to translate this funeral notice.
There worked a fantastic nurse on the child department. After the infusion she gave us hot chocolade and cookies and sometimes a small present. Other nurses always thought that these presents were rubbish and she had always saved the stuff from the basket. And, she always whispered "I can do it better", but since 1990 (?) aren't nurses any longer allowed to give you an infusion.
There is one funny story I will tell an other time.
nice friend:
Dore,
its soo sad to hear this :sorrow , ... may her soul rest in peace .. have courage ..
Umair
Manal:
May her memory always be in your heart :hugfriend
manal
Dori:
[Yesterday was a pretty difficult day, but a frien brought a small sunshine in my day to announce a little more about the new Shakira era. Music is good for the oul (so long as it is "good" music ofcourse)
But I wanted to say that I did enter a new chapter in my life during the night:
My right feet went from normal to a swollen and itching right feet. The only thing what came to my mind was: putting anaesthesia salve (Emla) on it and a towel on my feet so that I could not touch that feet.
When I told my father he wanted me to call the hospital. I refuse to do that, so he called a family member who is a doctor. I will be called back and then I must tell my story.
I do believe it's the Exjade. Especially that feet feels often numb and "sleeping" (= it doesn't get enough oxygen/blood flow)I know it's pretty strange, but my foot really act like this. On the other side: I have no prove that Exjade can cause this problem....but this problem occured after I started with Exjade. Accidentally?
Since 4pm yesterday I have a terrible nausea. So I just took an anti-nausea pill and then I will take the orange juice drink with 1500mg Exjade. Exactly 40mg/kg. I have plans to lower the dosage, if I will get good results back at friday. Does someone has any idea what my new dosage must be?
Muchas gracias,
Dore
p.s. Shortly after I post the message in Zaini's topic I heard the good message that my notebook was working again. I lost quite a bit, but I dont feel sorry. My pc works faster and I am going to take better care about it. My messenger is even working, so better communication. Hmm, it's a very old version so you can not send me files.
p.s. The Netherlands & UK having TODAY the elections for the European Parliament!!!
[In the Netherlands it's FORBIDDEN to held elections on Sundays!!!)
Zaini:
Dore,
When was the last time you checked your ferritin,as far as i remember it was around 1200? if thats the case i think you should lower your dose,40 mg/kg is a very high dose,lets see what Andy or other moderators think about it.
Zaini.
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