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Dore's appt

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Waleed:

--- Quote from: Dori on May 07, 2010, 10:06:02 AM ---My apiologies for deleting some of my posts but I have no choice.
I simple wanted to post here that I would not have been so far with my life without you. I found a voluntering job, I started to study more like fulltime and working hard on the getting more friends part. I wont say things are going easier but I am somewhat happier. I slowely see the sense of these supplelemts and starts to take them more regular. So far three days in a row! I will get there where I want to be.

--- End quote ---

No apologies dear, if deleting them relaxes you then I''m with you on it. Its your life, and every single alphabet of your posts is solely your property and right and you have the right to delete them. I personally believe that (maybe cuz i was just thinking of deleting my previous stupid posts  :rotfl ) ... Just be happy ... best wishes on thal day

Manal:
Good luck Dore  :wink

manal

Dori:
Thank you both. My consult with the doctor has been moved to 1 July. I am open for all suggestions/questions.

Dori:
So this Thursday I got a meeting with my doctor. That brings me by the question what should I discuss (and what not).
So please if you have any suggestions (how small though) share them with me. How more people think about it, how better the outcome of the meeting will be (or not but the subjects will be for sure!)
Thank you in advance!

Dori:
Update:

Me:
Mine feritin is again above 1000 is going up and up. I am five weeks of chelation now. My liver counts where more than 5 times doubled. I believe this was what stopped eating me and kept me nauseated. About two weeks I will repeat those tests and hopefully al is back normail. If not, I have no idea what the future holds for me...

Transplant:
One frined of mine has had her SCT in July. Her counts are still prety low and she is not yet making lots of progress. But she is emailing a bit more these pasts weeks. When I spoke to her she was still waiting for her counts to recover and doing labs one or two times ago. She had SAA; severe aplastic anemia.

My other friend is almost through her pre check-ups. She had a hemaferese (sp?) and almost passed out. I was so scared. But on the other hand, she gets one unit blood in 60min and now they talk 500ml blood in only 21 minutes from her! They have added two importants tests to her check-ups. Since I know her she complains about liver and spleen pain. So they will examine that on the same day was I will repeat my bloodwork. If all goes well she is taken in on the second week of September. She has thal intermedia/beta thal major and a family member as donor.

As for my chelation problem. I know I should be patient, calm and relax but sometimes I can not.

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