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Dore's appt
Sharmin:
Dore,
Did the sight in your right eye go black - or was it like a light flash which blocked a visual field? The later would indicate low blood pressure, the first one would need more investigation. Either way, you should consult your doc immediately.
Sharmin
nice friend:
Dore,
Best of Luck for all of your treatments , and please Take Good Care of your self ... :goodluck
Best Regards
Take Care
Umair
Dori:
no, I did not consult a doctor. And also not the docs in my family. I keep waiting untill it went back to normal.
It's like a mist. I have had it more, but that was years back.
Thank you Sharmin, I got those light flashes daily. I never knew what they were. They are very annoying. No, thanks it did not went black.
:ty
Dori:
Hi,
I have had my last tx at monday. At friday i had a hgb of 5.5 mmol (x1.8 = gl/dl). So I couldnt have wait any longer. I have no idea what is causing this fast hemolysis. An hour after i was home the pain came, but it was gone when i woke up in the morning
I did make it to the exam at tuesday, but you dont want to know how. The pain visit me in the train. I had panadol, but no water. So i had to wait atleast 40min. Since then I have had backpain and chestpain. My chest pain has left me a bit. I dont feel it all the time, only when i take a very deep breathe. My back pain is still here and my joints are hurting like i dont know what. I am also very sleepy. I am glad it is really blue and sunny (18 degree celcius). So I sleep a lot outside (in the sleepbag). Yesterday I read out 'Thanks for the memories' by C. Ahern (Zaini). But all this illness does not let me studying, so I have decided to not make the exam of European Law at friday. I hope I feel better at wednesday 8th April so that I can attend the Dutch Day of Rare Disease. I have convinced one other pk def. patient that she should go, so I really want to meet her. She is actually the lady of 36yr who want a bmt. She has been told she is too old and her sister can not be her match :(
To be honest, i am very thankfull that I have a working Iphone now. Nevertheless I am going to put me off the notifications. I want to rest so much as possible.
Next week are there exams as well, but I dont have one. So I am gonna try to (do) rest (sleep), read and recreation (enjoy).
Owh, the 10th is my birthday, the 13th i celebrate my bday for family and the 16th I got an other blood transfusion. Dont be suprised as you dont see me posting during that weekend. I have decided to stop playing the hero and if they decided i should stay in the hospital because of the pain, I will do that.
Take all good care of yourself and your love ones,
Dore
p.s. tomorrow 20 degree, saturday 18 degree and sunday only 14 :( So my advice: enjoy the weather (if possible).
Sharmin:
Dear Dore,
Please have a chest xray if you are having pain and tightness in your chest, my dear. I hope that you feel better really soon. I am glad that you have decided to stay in the hospital if you have pain. We will miss you over the weekend.
I wish you the best with all of your exams, you are incredible - everything that you do.
I am very excited about your birthday - you will have to tell us all about it!
Sharmin
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