Discussion Forums > Thalassemia Major

Update from Cherieann

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Dori:

--- Quote ---Loraclear & Alanase nasal spray - hay fever and sinus
Sotalol 80mg morn & 40mg nocte - tachycardia
Fluconazole 50mg daily - keep thrush at bay
Cal D Forte 1.25mg  monthly - Osteoporosis
Calci tab 500mg morn & nocte daily -osteoporosis
Folic acid 5mg daily - 4got
Ascorbic Acid 100mg nocte when on desferal - Haemosiderosis
Hydrea 500mg daily - less transfusions (crossing fingers and toes)
Zincaps 50mg twice weekly - your comments
Nitrofurantoin 50mg nocte daily - stop recurrent UTI
IP6 taken nocte when on desferal - thanks to your comments
Chlorella 1 tab when chelating - nature's detoxifier and flush
Novorapid 6 units morn, 8 units lunch 10 units Dinner
Glargine 16 units morn 16 units nocte. Insulin still being adjusted. Eating more hehe
--- End quote ---

What is Fluconazole?
What is Zincaps? (zinc I gues..)
What is Nitrofurantoin 50mg nocte daily - stop recurrent UTI ???
What is Chlorella?


All my fingers and toes are crossed for you!!! I really hope that it is working for you!
I do understand that you are a teacher. What do you teach and how old are your students? My mother is a teacher Dutch. So I know how long it takes to prepare everything and correct the exams. She teach at highschool (gymnasium), so they are between 12yr and 18yr.

I can not believe that Exjade is not subsidised. I hope they soon understand that they must subsidised this!!!!!!! You can not take it without subsidised (in my case).


--- Quote ---,i remember i read some where that even thals should be taking light snacks every few hours to avoid dropping sugar levels in blood,
--- End quote ---

What is the basis of that saying?

Zaini:
Hi Dore,


--- Quote ---What is the basis of that saying?
--- End quote ---

Please check this thread,

http://www.thalassemiapatientsandfriends.com/index.php?topic=2182.0


--- Quote from: Sharmin on October 16, 2008, 11:09:24 PM ---Hey guys,

A few doctors have informed us that individuals with thalassemia (major, intermedia and minor) should eat regularly.  This means that they should not go longer than 2 - 3 hours between meals.  This is probably a good idea for everyone.  This sustains blood sugars levels and energy levels.  It is also a good idea to stay well hydrated, as thals are prone low blood pressure especially just before transfusions.  Eating and drinking regularly also helps avoid headaches and irritability. 

Most thals majors are aware that it helps to be well hydrated the night before a transfusion because it helps the nurses get the IV on quicker.  It also helps to show up with an extra layer of clothing, although you may feel very warm - it puffs up those veins and makes the pokes easier:)

Sharmin

--- End quote ---

Zaini.

nice friend:
shuh.... its realy nice to hear from you cheriean ...... WElcome back after a long time...

Umair

cherieann:
Zaini,  Ferripox is nt an option given as Desferal seems to be the most noted here.
 Peartree Fluconazole is a tablet for thrush. Instead of treating recurrent thrush when it occurs, I take the tab daily and it stops the thrush. This is a side effect from desferal for me along with Urinary Tract Infections so I take Nitrofurantoin to keep it at bay.
Zincaps is zinc tabs
Chlorella is tablets I found in a health shop. I find that my urine is darker when I take them and I don't feel so slugish.

I am a Teacher Aide who works with Special Needs students aged between 11 to 13 year olds.
Along with the teacher I help plan subjects but I also deal with teaching them basic self care like periods for the girls.

Hello Umair - Its nice to be back with you all. I'm trying not to stay away too long but sometimes I tend to overdo things and leave no time for myself. Its good to be back with you all and this will be the first time that I have opened so much about what I am going through. (well some of it). I feel pretty vulnerable at the moment as I feel this shouldn't have happened and in a way I am scared but one day at a time I guess.
Thank you so much Zaini, Sharmin, Peartree and Umair, Your comments really boost my ego and make me realise that I'm not alone after all.

nice friend:
hi Cheriean :
keeping your self busy is the best strategy to cope wiht thal , it keep's you a little far to the worries ... keep it up ,... MAy God bless you with a long life , soo you teach more kidz , and keep's you busy with them so i can feel lucky ... :grin :grin :grin .....

keep in-touch
Best Regards
Take Care
Umair

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