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Participants Needed for Survey about Starch Desferal (S-DFO)

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Manal:
Me too will do

manal

Andy Battaglia:
Please direct any questions about this survey to Janet in the email provided. (Because of uncertainty about FDA rules concerning direct contact with patients by drug companies, Janet has asked that her email address be removed and that people wishing to contact her, do so through me).

Nur:
i have emailed them and waiting for what happens next..Hopefully i can participate

 :biggrin

Zaini:
I emailed them,lets see what happens.

Zaini.

Zaini:
Hi Guys,

I got a reply from Biomedical Frontiers,



--- Quote ---   Zaini,
Thank you for your willingness to help.  We so appreciate it and need your participation to help us.


Biomedical Frontiers is a small company.  We don't have the resources that large drug companies do, but we do have a powerful, long acting iron chelator that provide effective therapy in one hour, once a week.


Our challenge is raising money to get to Phase 2 Clinical Trials.  This is no small task.  However, we believe, with the help of patients, we will get there. 


I will email you a survey for your answer, and also a Release of Information Form. The Release of Information form allows us to use your comments on our website.  (if you prefer, we would use only your first name and last initial to maintain confidentiality.)


Look for my next email tomorrow.


Sincerely,


Janet Hallaway
Biomedical Frontiers

--- End quote ---

Tariq got the same reply.

Zaini.

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