Discussion Forums > Thalassemia Major

Suffering by malaria

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Sharmin:
Ani,
Please know that you are not alone - we are all here with you  :hugfriend
Sharmin

ANI:
Dear All
Yes, My son has Thal major. His Se Ferritin level is also high.One thing was very peculiar about the serum Ferritin . We started Asunra(Exjade) around 6 month back when his Ferritin level went up to 1000. His body weight being 12 kg that time we started with 200 mg daily but surprisingly after 1 month f medicine and one transfusion in between the ferritin went up by 400. it was 1400 then. Again after one month when we checked it it was again more by 400( Now 1800). we conslted doctors and wrote to Novartis also.
They asked to start 300 mg daily( His body weight now is 13.5 KG) and chedk ferritin after 3 months.
Is it something common? Can someone advise on this also?

nice friend:
Hi ANI,
i hope that you will b fine and login again very soon ...yeah, its pretty mmuch normal with exjade . bcoze exjade first remove's iron from tissues bcoze of this Ferriting usualy rise in starting with exjade.. soo its common thing... here are many posts related to exjade and this rise in Ferritin .. i m posting the links of those posts .. please check these links to know more about Exjade ...

to find out the answer of 30mg/kg is the best dose ...
read these threads .... it is very common to elevate S.fe for 1st 4-6 months after starting Exjade , you i'll find the reason why it happen's in these threads .... and to make sure , you can ask this again , on forum ..

Subject : " Ferritin going up with Exjade. "
Link      : http://www.thalassemiapatientsandfriends.com/index.php?topic=987.msg7542#msg7542

Subject   : " Exjade® benefits chronicaly transfused patients (Exjade removed iron from heart) "
Link        : http://www.thalassemiapatientsandfriends.com/index.php?topic=2412.0

Subject   : "Exjade Question........ "
Link        : http://www.thalassemiapatientsandfriends.com/index.php?topic=688.0

Subject   : A few interesting bits of information about iron and chelation
Link        : http://www.thalassemiapatientsandfriends.com/index.php?topic=2629.0

Subject   : Exjade users advice
Link        : http://www.thalassemiapatientsandfriends.com/index.php?topic=1718.0

about Ferrritin : my temprature were alway in 90's when my Ferrritin  was realy high. ..
and about malaria , i think it will take time to get back to energy levels on wat he was bfore he got ill ( malaria ) .. i will try my best to find some article about malaria and thalassemia ...
and i hope that other senior members wil help you as well ...

Best Regards
Take Care
Umair

Zaini:
Hi,

Its very common to see an increase in S.FE when Asunra is started.Until you reach the maxim um dose,which in your son's case would be 400 mg,slowly increase his dose and stick to chelation,i hope you'll see a decrease soon.Please keep monitoring his liver and kidney levels.

Zaini.

nice friend:

--- Quote ---Please keep monitoring his liver and kidney levels.
--- End quote ---
:exactly :agree to wat Zaini Said , in addition i want to say that , Liver could also Cause Slight Fever as well , Fever like condition in which your Boddy remain continiously a little Warmer than normal ...

Best Regards
Take Care
Umair

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