Discussion Forums > Thalassemia Major

19 weeks pregnant and found out today that baby has beta thalassemia major

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Cari:
Hi guys,

I am doing really well - thank you so much for asking :hugfriend.  It has been a stressful few weeks  as i have had 2 close family members in the hospital but both are doing well and back at home now.

Other than that, things have been really good.  I have moved past being sad about our baby's condition and have accepted the fact that our little warrior is going to have to be one strong girl or boy!!!  I am doing a lot of research and learning so much. There are still things that I don't understand but I think these are are things I will have to go through in order to figure it out completely.

It is amazing to me how many great people are out there willing to help in the time of need.
I spoke with Eileen from CAF recently and she mentioned there is a specialist in Atlanta that I can go to so that is wonderful!  Eileen is also helping me find a pediatric doctor here.  She spoke with me for a long time the other day and I was able to obtain a lot of information.   

Every day I feel more and more excited about seeing my little one.  Sometimes I get scared and I just hope I will be strong enough to get my baby through it...but I think that is only natural.

Manal:
I am happy that you feel much better, please keep reading cause knowledge is power and always feel free to ask about anything that you don't understand. Keep it up :hugfriend

manal

Sharmin:
Carisma,

I am glad that your family members are well and home from the hospital. 

It was so great seeing you message.  I am glad that you spoke with Eileen, she is a wonderful person.   Your little one will be brave and wonderful he/she is lucky to have you for a mom :) 

Much love,

Sharmin  :hugfriend

Zaini:
Carisma,

I am so happy for you  :hugfriend yes your little warrior will be strong and you'll even draw your strength from him, :hugfriend.

Good luck with everything.

Zaini.

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