Discussion Forums > Thalassemia Major

permanent temperature

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Nur:
First of all, i wanted to say thank you to Rozitka for bringing this topic up. I kept forgetting to post this issue for such a long time.

I have noticed my tempreature is slightly higher especially during hot days and when i am sleeping. I just cant sleep without having the fan on even on a rainy day because i would sweat a lot and my body feels hot too.. I would sweat even in an airconditioned room! 

when i was in the hospital ward, the nurses would come and check our tempreatures. they would come in odd times and in my case, they had to wake me up to check it. and it will be slightly higher like 37.5C. Of course they would be making a big deal over it because they will not transfuse if i had fever and i have a tough time explaining that it is normal for me to have a higher reading and worse when i'm asleep. that is how i know that my tempreature is higher while i'm sleeping and after that, i wont sleep until after i get my blood. I just tired to argue with the nurses...

I am glad to know that I am not the only one facing this issue. I was being told that the marrow is working hard and that is why i am feeling hot all the time. Does anyone know if this slightly high tempreature can cause something bad in the future?


Nur

PositiveVibes:
Hi again! I want to answe some of the qestions you asked me.
My ferretin level is abou 1200
I use Desferal combined with Ferriprox
I have my spleen kept, which a month ago was being monitored and was ok
And I did my regular blood tests that was ok again and did some additiomnal blood test , regarding CRP- which my doctor explained that was showing if there is an infention. It was also in the norms.

As Andy asked me about antibiotics, I took antibiotic for 6-7 days when this temperature started, but there was no positive result. So, I stopped it.

I should take in mind the advice to check my appendix, in one or two days when I go to my doctor. That is all.. I don't know what else.. Is it possible to be due to my spleen ..
Thank you very much !!!!!!!!!!!!!!!!!

Sharmin:
Hi Rozitka,

Your ferritin is pretty good and you are on a great chelation plan.  I would agree with Andy, and that you should have your appendix checked. 

Is your spleen enlarged?  Do you have any problems with your spleen?   

I hope that you feel better soon, and that your doctors are able to diagnose and treat the source of the problem soon.

Do you take supplements and drink adequate amounts of water?

Sharmin

PositiveVibes:
yes, sharmin I do drink a lot of water, even more than the others around me. When I was to monitor my spleen, the doctor said it is pretty much in the norms. I missed to mention that I usually feel hot most of the day and swea quite much, if there is some relation to the temperature. I really hope that it won't turn into sth bad. I will go to have blood in 2 days and will check my appendix and got blood tests again.
The worse thing is that I feel very tired of these problems which reflect on my mentality. I started to fall asleep very difficult and have many nightmares concerning my health and the thalassemia I have. It is awful and think I will need to visit a psychologist.. :< I hate myself being so weak in such situations but it is me ! :<
Thanks again!
Take care!

Andy Battaglia:
One other possibility is the gallbladder, so add that to the list of what needs to be checked out.

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