Discussion Forums > Thalassemia Major

permanent temperature

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KHALIFA:
Yes sharmin that true ( you let me remember what i forgot ) i used to give my son encluding the desferal alot of black tea that help to reduce the iron also with a lot of water that not containing sudiom or too much salt all that to encrease the folium of urin because as you know the iron go always with urin  and the tea make alot of help to let any body drink it he feel he have full blader.. also when i took my son for BMT in 2002 i found out there is fibroses in his lever grade 2 ( it's 1, 2, and 3 ) after we came back home with BMT rejection i found out his feretin level is 6000 so i just gave him desferal and as i said alot of water and black tea when we go back for the second BMT Dr Paola told me his fibroses almost nothing what you did for him ? and as i told you i told her she was very happy because the low feretin and no fibroses help alot for BMT ....
                                 khalifa
                           state of kuwait

Manal:

--- Quote --- I wasn't aware that there is a relation between thal major and temperature
--- End quote ---

Sharmin, every red blood cell that is exposed to hemolysis releases an amount of heat (energy) as a result of such process, that is why most thals are always feeling hot and can not stand heavy clothes. My son is a big example of dressing like Tarazan :rotfl

manal

Sharmin:
Khalifa,

I will be sure to do that for my son too - thank you for your wonderful advice :)

Manal, 

--- Quote ---My son is a big example of dressing like Tarazan
--- End quote ---
  How cute!!  I just adore Ahmad, please give him a biiiiig hug for me  :bighug

And yes, you are very right about dehydration causing temperature to increase!  Even more important when taking exjade.

Sharmin

Manal:
Thanks dear :hugfriend

manal

Andy Battaglia:
Some background notes for everyone first. Rozitka uses Ferriprox. The problem with the low grade fever has persisted for most of the month of April. Previous testing this month did not show any sign of neutropenia.

Rozitka,

The low fever would not be of much concern, except you have told me that during this period, you have not been feeling well. Does the doctor have any explanation for why you don't feel well? Did the doctor offer antibiotics? If not, perhaps you should ask to be given a course of antibiotics to see if indeed, you have a mild infection that is causing the fever. I think you should also ask to have a physical examination of your appendix to make sure it is not inflamed at all. Because you have been taking Ferriprox for awhile and there has been no sign of a low white blood cell count, I think that the fever is more likely caused by an infection and not a med or being thal. It should be very easy for your doctor to exam you to make sure your appendix is not the problem, and because this can be so serious, it should be checked if it hasn't already. My appendix almost killed me so I know how important this can be.

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