Discussion Forums > Thalassemia Major

my partner has Thala major

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smile22:
hi, im goin to marry someone who has thala major, hes 29 years old and by meeting him you wouldnt know he had it. my family knows about his condition and are tellin me not to marry him.. everyones (my family) sayin hes got a short life span and will only live up to the age of 45 which isnt a nice thing to hear.The doctors have said they cant predict his life span. im not a carrier so our children wont have thalasemia will they? they will just be carriers...? it is possible to have children though isnt it?
he goes every 4-6 weeks for his transfusions and had his spleen removed when he was a child. ive done some research but cant find any cases of people over the age of 50 with thala major......... im really worried and have been reading up on heart failure too. i dont want anythin like this to happen and im just confused. do you know any sites, or of any cases that involve the elderly with thalasemia major who have had children? i really need help and advice, im confused and mixed up with all the information being thrown at me. all i know is i dont see him as having thala major, i see him as my life long partner, hes perfect in my eyes, i just hate the fact that my family are tearing us apart.

Lena:
Dear smile22,

 I know lots of thals here in Greece over 50. Life span is open now in thalassaemia, do not worry. If a thal complies with his/her therapy, then everything is normal. And yes, you can have children and they will not have thal, they will only be carriers. Where are you from?

smile22:
Im from the UK, its just difficult with my family being so negative .... are the chances of us having children limited though? i nkow he can have hormonal injections but what does this actually do?
x thank u for your quick reply.

Zaini:
Hi Smile,

Welcome to the forum,We have quite a few members who are married and have children and they are thal majors :) one of them just had her second baby :) and our administrator Andy knows a guy who has become a grandfather :).

With on time transfusions,and proper chelation,thalassemia is a very manageable disorder,do you know what are your Boy friends's iron or ferritin levels?

If he is maintaining his hb and his ferritin is low there is no reason to believe that he can not live a haelthy life and have kids,yes having kids is definitely possible but this all comes down to maintaining ferritin levels,and if he has high iron levels,still not to worry he can start aggressive chelation and get rid of his iron.

As to predicting life span,no one can predict anyone's life span,its in God's hands,but please be assured that with proper maintainance thalassemics can live a fairly normal life,can have careers,become parents and everything and anything they want to do.

Please feel free to share if you have something else on your mind :) .

Zaini.

Zaini:
UK has very advanced thal care,there is a very good hospital in London where a thal specialist is present.

Dr. Farrah Shah, Specialist (Thalassemia Physician)
Emma Prescott, Specialist (Thalassemia Nurse)

The Thalassemia Clinic, Mercers Ward
Whittington Hospital NHS Trust
Highgate Hill, London, N19 5NF

Phone Number
02072723070

Where does your Boy friend goes for transfusions? Knowing about his ferritin level is very important,low ferritin levels can help lead a normal life,and i'd say again if he has high levels still he can start right now with your help and can achieve the goal,one of our members had ferritin level of 13000 and he brought it down to 1300 after an year of aggressive chelation,so he might need your support but he can do it.

Zaini.

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