Discussion Forums > Thalassemia Major
Change in treatment
Manal:
Hi Dimple,
Irradiated blood means that it was exposed to radiation to kill any existed bacteria or virus
Priya, should be on a
1- good multivitamin and mineral without iron or vitamin C.
2- Calcium, magnesuim (best dose is ratio 2:1)vitamin D, zinc, trace elemnts (you can find this all in the chewable osteocare)
3- Folic acid 5mg
4- B-complex because the amounts the mutlivitamin are usually small but you have to e sure ofthis first
5- Vitamin E, it works as an antioxidant and is so important to fight the oxidative stress on the body
6- IP6
These are the important daily supplements that are aMUST
But the usage of other natural supplements like wheatgrass,carao, aloe vera, resveratrol,... is also a good idea
Also i think that you should ask the doctor about the blood rate and the time of transfusion in order not to put extra pressure on the heart as Maha said
manal
Zaini:
Dimple,
Although you are transfusing Priya now,i'd suggest you try carao,it may help you maintain a bit long interval between her transfusions,and 16 ml / kg blood is just fine i think,why did your doctors transfuse her with 20 ml/kg?
Zaini.
Dori:
Irradiation of our donor blood??????????? Seriously??! So far as I know they only prepare it this way for cancer patients. :s
What is cortisone?
What is lasix?
What is recormon?
@ the starter of this topic: it seems that I can not help you,but I definitely gonna learn a lot from this discussion!!! Muchas Gracias!!! Cuidate y Adios
Dore
PositiveVibes:
Zaini would you please tell me what is carao and doest it really help to increase your interval btw blood transfusions?
--- Quote from: Zaini on May 17, 2009, 06:06:38 PM ---Dimple,
Although you are transfusing Priya now,i'd suggest you try carao,it may help you maintain a bit long interval between her transfusions,and 16 ml / kg blood is just fine i think,why did your doctors transfuse her with 20 ml/kg?
Zaini.
--- End quote ---
Zaini:
Roztika,
You haven't read about our carao trial? You can read about that here in these posts
http://www.thalassemiapatientsandfriends.com/index.php?topic=1259.0;highlight=carao
http://www.thalassemiapatientsandfriends.com/index.php?topic=1791.0
Carao is a fruit,and what we are talking about is it's syrup,my daugher used to transfuse every three weeks few months back and i was really worried because her hb even after three weeks tend to be between 9 and 9.5,but after starting carao we gradually saw an increase in her hb,on last transfusion her hb after four weekd was 10 and we are thinking of extending her transfusions to 5 weeks and see if she can maintain hb above 9.5.
You can order it online from here
http://www.tropicalhealthfoods.com/
http://anemiaanswer.com/
Or you can PM our member Lloyd Standish ,he was the one who provided us Carao.
Hope this helps,
Zaini.
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