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Just to let you know ... I'm happy!
nice friend:
--- Quote ---Last weekend a conference was held here in Greece and Dr. Stamatoyannopoulos made his announcement concerning the news on gene therapy. I was happy to hear, that he said everything is ready for the second phase, the side effects have been overcome and by the end of 2010 here in Greece, thals will start to participate in the second phase and their genes will be transferred back to them- healthy now
--- End quote ---
Wow ... its gr8 to hear that, Lena .... i m soo happy :) ...
--- Quote ---Let's see. Thalassaemia may, by the end of 2010, become a memory for some of us. Hope and pray.
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always praying for that day for all of us , for the all thals of the world .. i hope that day will come soon ...
Umair
Manal:
Thank you so much Lena for sharing this wonderful news, i never stop praying. Please keep updating if you know anything more :hugfriend
manal
Sharmin:
Andy,
Your post should be read by every thal.
Lena,
That is such wonderful news. Come on thals keep chelating and taking your supplements - hopefully a cure is around the corner.
Sharmin
nice friend:
Soo True Andy and Lena ... m really impressed to both of you .. Andy's Research and Lena your experiencea nd achieve , i m inspired to you people ......
--- Quote ---Why do thals refuse the treatment that could save their lives? As it turns out, there are many reasons. Some of these I saw in Lisa. I think one of the things that bothers me most about what Lisa went through was that she really did not believe a thal could live longer
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!00% True , in my thal center a few of my friend's thiought's the same and when i told them a few members of this forum , the results ccame out , and they're compliant with chelation and their Fe levels are decreased alot ( bfore that their Fe was above 9000 and after starting chelation now they're below 3000 ) soo its pretty much good thing to share your experience and to encourage the people around you ... they wasn't my friend bfore that , but i took the 1st step and start talking to them why they are not compliant with chelation and why they're wasting remained desferal ...
--- Quote ---The answer is more like "why poke a needle in your skin 5-6 days a week when life has nothing to offer a thal?" When your prospects in life are severely limited, what is the incentive to stay alive? When your options in life do not include relationships and marriage, education and careers and so forth, life can look pretty bleak and not worth the effort
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they raised this argue too , and i replied them that " man make's his life with his own efforts , no one will give you everything in your plate , you have to strugle to fill your plate , and everyone has its very own kind of strugle , look at normal persons how much they are strugle for their life and future and you have to do that as well " ...
i mentioned this all just to say that dont hesitate to talk to encourage other , they will reply with rudeness and that is time when you can take the charge of their minds ....
once , one of my friend was raising argeuments about pump and IV desferal , he said " with pump u cant do this and that u feels like this blah blah " and with IV u comes sticked to one place "... after listening and discussing alot i rant over him and replied " if u wana do this then do or if you won't to do this then please don't try to make me afffraid of it " and then he said " wow, for the first time i m seeing u in this mood "...... and the same person raised the this one arguement :
--- Quote ---why poke a needle in your skin 5-6 days a week when life has nothing to offer a thal?" When your prospects in life are severely limited, what is the incentive to stay alive? When your options in life do not include relationships and marriage, education and careers and so forth, life can look pretty bleak and not worth the effort
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in addition he said " life has o meaning for me "
and for a moment i was un-answerable to him ,, but then a thought came in my mind that was "its the time for an emotional lecture" and then hahahah : here it is wat i replied :
you cant even die by refusing all this buddy , you have to live untill the time come's up .. you have to live for your parents, for your younger bros & Sisters ... you have to be the right hand of your Father , cant you imagine how they feel by seeing you in pain?? i can tell you they feel too bad ..
dont want to live na ?? okey dont live for your self live for your parents and family ... give relief to your father and take the charge of your treatments and health ... etc...etc...etc... it was almost 90 minutes lecture .. ( he's a faithfuly chelating thal now a days since last 6 months, 4 days a week + Ferriprox ) .... and i feel very happy to see improvements in his health .....
i dont wanted to share this story , but i shared to let u people know how tackle a thal when he come's to refuse everything ...
i think , its a long post aahh .... i should have to finish it now....
Thanks Andy, Lena & all other for super duper post under a super duper topic ...
Lots Of Best Wishes &
Best Regards for you all
Take Care
Umair
Andy Battaglia:
Umair,
I loved your post! I also love that you are taking the spirit of being thalpals and helping your peers. You've got to be pleased to see the ferritin drop in those who listen. I am really proud of how our members reach out and help others. We are making a real impact in the world of thalassemia, reaching patients, families and friends and even doctors. And all this without a board of directors or a budget. It just shows what can happen when people take a positive and giving attitude to heart. :thumbsup to everyone!
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