Discussion Forums > Thalassemia Major
Hb levels
Sharmin:
Rozitka,
Doctors in Oakland suggest that they recommend not removing the spleen if possible. I think that transfusing sooner once and perhaps increasing your tx volume slightly will resolve your problem. Keeping your hg above 90 also prevents the spleen from growing.
Have you had a coombs test to determine if antibodies are present? I don't think that you have antibodies because you hg drop is not drastic. I think that the supplements will be most helpful to you - folic acid, carao, nigella - these supplements protect red blood cells and keep them healthy longer.
Sharmin
SF:
--- Quote ---the recommendation in Oakland is 14 - 16cc/kg every 4 weeks. Since you are transfusing sooner the smaller volume should be okay but I don't know what the standard is for 3 weeks.
--- End quote ---
Rozitka,
15 cc/kg every 4 weeks comes out to be roughly 11.25 cc/kg every 3 weeks. You are getting less blood per your weight. I would increase the volume to at least about 625-650 CCs and keep infusing every 3 weeks and see how you hold up your hb.
Best regards,
SF
PositiveVibes:
Hi again, I have no time and that's why I could not inform you about my latest hb .. well on 29th may I made some blood tests and the hb level was 103. It was the 10th day after my previous transfusion. Then I receive the usual 2 sacks of blood and expect to go to blood transfusion again on 18th june. Then I will see how my hb levels is going on.. and hope it is not decreased again :)
cherieann:
Hope all will be right soon.
Thinking of you
Dori:
--- Quote from: Sharmin on May 22, 2009, 11:08:02 PM ---Hi Rozitka,
It seems that you are receiving 10cc/kg of blood every 3 weeks - the recommendation in Oakland is 14 - 16cc/kg every 4 weeks. Since you are transfusing sooner the smaller volume should be okay but I don't know what the standard is for 3 weeks. Your pretransfusion hg should be around 95. Perhaps next time your doctor can transfuse you a little sooner - (2weeks) and then you can continue transfusing every 3 weeks again. Sometimes if you fall behind you just need to catch up.
I hope that this helps. Supplements such as nigella, wheatgrass, carao and others should be helpful as well.
Sharmin
--- End quote ---
What's the calculation of the maths you used?
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