Discussion Forums > Thalassemia Major
Hb levels
PositiveVibes:
Hi Manal ! I used to study and live in the UK this year and while I was there it was possible for me to get 3 units of blood.
However during summer I will be staying in my country where you cannot receive more than 2 units. The only solution to increase my hb is to reduce the time interval btw transfusions.
As far as L-carnitine is concerned I am starting it these days. What do u think about it ? Any help ? Should it be in the form of pills/tablets or syrup. Before or after the meal?
Thank you a lot!
Best Regards!
Manal:
Hi Rozitka
Yes L- carnitine does help. Not only as an antioxidant and muscle strengther, but it also can increase the time between transfusion in some patients. It can be in any form. I have friends that take the L-carnitine of GNC and they are satisfied with it.
You can take it before or after the meals, as you like, but in my opinion i believe that any thing is better taken after meals unless the opposite is specified.
Here are some links discussing the importance of L-carnitine to thals
Improvement of Cardiac Function in Thalassemia major Treated with L-Carnitine
http://content.karger.com/ProdukteDB/produkte.asp?Aktion=ShowAbstract&ArtikelNr=76522&Ausgabe=229926&ProduktNr=223829
Assessment of Puberty in Relation to L-carnitine and Hormonal Replacement Therapy in {beta}-thalassemic Patients. http://lib.bioinfo.pl/auth:El%20Beshlawy,A
Apoptosis in Thalassemia major Reduced by a Butyrate Derivative
http://content.karger.com/ProdukteDB/produkte.asp?Doi=87890
Diastolic Dysfunction and Pulmonary Hypertension in Sickle Cell Anemia: Is There a Role for L-Carnitine Treatment?http://content.karger.com/ProdukteDB/produkte.asp?Doi=89472
Pulmonary hypertension in beta-thalassemia major and the role of L-carnitine therapy.
http://www.ncbi.nlm.nih.gov/pubmed/19065439?dopt=Abstract
Hope this helps :wink
manal
Dori:
Last week my pre transfusion was only 7,4 gl/dl. I am not even try to describe the dilemma I am in. Fact is that I will try to solve this issue completely before I leave on vacation to very rural France. The other fact is that I need a better transfusion scheme. I won't have my next transfusion until the second of July.
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