Discussion Forums > Diet, Nutrition and Supplements

Message from Professor Gambari to all thalpals

(1/2) > >>

Manal:
Hi

As you know i have met Professor Gambari who works on the Fetal Hb inducers and he is working on many inducers including Resveratrol, Mithramycin, Angelicin, Bergamot oil, and he is interested in testing any other inducers (carao, aloe vera, nigella, mangosteen.........)

Prof. Gambari knows about our site and he is asking anybody here whether (major or interemdia) who is taking resveratrol or any other HB inducers to tell him what is your observation about this inducer as this would be a great help to him in his work.

If you like you can send me your comments and i will forward them to him or you can contact him directly.

One more thing he asks to everyone using a HB inducer is to


--- Quote ---....Please suggest people taking these compounds to ask doctors for analysis of HbF during the treatment. This is a crucial point for understanding the effects of the treatments
--- End quote ---

He means by this is that before starting you should do an HPLC or Hb electophoreseis to indicate whether there is any change in the HB F before and after using the HB inducer.


If you have any question let me know :wink

manal

Zaini:
Hi Manal,

If he considers carao or nigella as a fetal hb inducer then you know my daughter is taking both of them,and we saw a week's increase in her transfusions after starting carao,infact this time i have taken her appointment for 4 and a half weeks.Lets hope we can extend to 5 weeks :) .

Zaini.

Manal:
That is great Zaini and i too hope it will extend to more and more.

 I will definetly inform him and i also have sent him all the information about carao and gave him the contacts of Lloyd Standish so maybe they can get to work togather

manal

Manal:
Andy,

1- Can a thal patient who is regular transfusion dependent undergo HPLC ?? Or it won't be relevant since it will be the donor blood??  Can it be done right before transfusion so we can test the patient own fetal Hb in order to decide whether inducers have any effect or not???

2- Is it possible to switch gamma genes in patients who have high HB (regularly transfusing)? Is living with close to normal HB a reason why fetal HB inducers don't work with majors???

manal

Manal:
Helloooooooooo, anybody there?????????? :rotfl

manal

Navigation

[0] Message Index

[#] Next page