Discussion Forums > Thalassemia Major
maintaining hb levels
Zaini:
Good luck for the tests Emby,everything will be alright Inshallah :) .
Zaini.
Emby:
thanks zaini
Emby:
hi,
got hb results.....older one 6.8..gotta have 1300mls tx. little one hb 8...having 1000mls tx using old formula.
asked about vit e but was told that it is not normal practice to give to thals over here but i asked doc to please look into this which doc agreed to.
its not fair on the boys, when their old formula was already working for them...perhaps needed a bit of tweaking, to have inadequate tx then to have a whole lot (sigh!)
God willing, inshaallah, all will go well tomorrow.
hope you all well.
Emby:
hiya,
just want to ask if it is safe if my boys are exposed to swine flu?.....spreading like mad here !!
maha:
Hi Emby
Is that formula actually used by your doc? Even when the desired hb is 14 as per the formula my son should recieve 180ml which is exactly 12ml/kg. If the desired hb is 13 then he should have 135ml which is far too less than what he is actually recieving ie 225ml as per the 15ml/kg rule. Your boys problem is just that they are getting less blood than required. My paediatrician also feels 12ml/kg every THREE WEEKS works the best, but we were more comfortable with 15ml/kg every four weeks. I feel you should talk to your doc about it.
take care
maha
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version