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Hemaquest Initiates Clinical Trials in Sickle Cell Disease and Beta Thalassemia

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Manal:
Thanks Sharmin and Andy for this update, so eager to know the results and to try this drug

manal

Sharmin:
Dr. Perrine was one of a few doctors who really stood out and had something tanglible to offer at the conference.  There were many studies that are essential to the understanding and treatment of thalassemia - but the studies were at such early stages involving mirco biochemical concepts that we could not relate to at this point. 

Dr. Perrine's study can lead to an actual solution for hemoglobinopathies.  Dr. Saidelain's work was also very impressive and relevant in the near future.  I think that Genetics Pharmaceuticals trials will allow themselves and others to learn - and the patient they treated has been transfusion free for quite some time - their work has some details that may need to be ironed out.  Going head to head, these two groups may offer a cure for thalassemia in the next few years. 

Bone marrow transplants have also come a long way, but I think that there is a way to go before they can be considered a safe cure - especially if a matched sibling donor is not available. 

Oakland's work on antioxidant therapies was also very impressive.

Sharmin

suk838:
that's a good news, sad i am living in Singapore can't take part.


peace...

Narendra:
While this particular trail is only for those in US and Mona, West Indies - please do NOT exclude yourself only thinking trails are for only US residents.

In one of the session, they did talk about the importance of clinical trails and that these trials are worldwide. For those interested in clinical trials related to thalassemia go to http://clinicaltrials.gov and search for Thalassemia.

You can search for the trials in your area if you are interested.

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