Discussion Forums > Working Towards a Cure
Can we support this? PLZ HELP it might be on Oprah next year
lamontef:
Hi everyone,
I'm the guy that Mariam has been talking to about Nicosan, she's asked me to give you a bit more information and answer any questions if I can. I'm not a doctor, I haven't done research, but I've spoken to the guys that have worked on Nicosan and they've told me that that they've worked with Thalassemia patients.
As Andy mentioned, Nicosan has had a rocky history, but that's primarily because it ended up in the wrong hands. I've been working for the last 18 months with the founder of Xechem, Dr. Ramesh Pandey, to regain control of Xechem and to move Nicosan forward. We are very close, that's why Mariam has requested your help, it was as my request.
The situation right now is that the license to manufacture and market Nicosan has reverted to NIPRD (National Institute for Pharmaceutical Research and Development) in Nigeria. NIPRD revoked the license from Xechem because they failed to meet market demand, failed to provide quarterly reports, failed to maintain proper quality control and failed to pay quarterly royalty payments. On top losing the license to Nicosan, Xechem Nigeria has been taken into receivership by NEXIM and two other banks in Nigeria. Right now, I'm in a situation where I'm supplying a proposal for our group, headed by Dr. Pandey, to take over Xechem Nigeria from the banks. It's our mission to bring credibility to traditional medicines as prescription drugs globally, starting with Nicosan.
As has been mentioned, Nicosan enjoys Orphan Drug Status in both the US and European Union. In 2007, work was about to begin on the Nicosan clinical trials in the United States at five hospitals, but an investment group brought in by Dr. Pandey removed him from management and then stopped the clinical trials, stopped the construction of the new facility in Abuja and over the next year drove the company into bankruptcy.
Anyway, the point to all this is that I'm submitting a proposal to the bank (Federal Government Investment Bank - NEXIM) this week and I'm looking for support from anyone affected by Sickle Cell or Thalassemia. At this time we've been told it has helped Thals, but we need to do more testing to see the level of help it can provide. To be honest with you all, from what I understand, the reason it wasn't tested more was that there isn't that much Thalassemia in Nigeria and that's were there is drug regulatory approval for sale. Moving forward, we hope to do tests and if we find out that it's beneficial, we'll work to get approval to sell the product elsewhere.
What we are looking for is individuals that are hopeful of helping us bring this promising treatment back into production, tested and available for sale. If you are, please contact me at lamontef@yahoo.com.
If you have any questions, please don't hesitate to contact me, I'm happy to answer anything I can and I'll work on getting answers to questions that I can't.
Thanks much,
LaMonte Forthun
Andy Battaglia:
I have had some email communication with Dr Ramesh C. Pandey and I feel his work is something we can all support. He does hope at some point, to run clinical trials of Nicosan in thalassemia patients and he is also active working using herbal drugs as prescription drugs in other areas of interest to thalassemics, including malaria and type-2 diabetes. His work fits so well with the philosophy of our site and I wish him the best in his continued endeavors. I have also requested that he remember us and keep us updated on his work.
lamontef:
Hi Andy,
Dr. Pandey mentioned that you had been writing him, I'm glad that he's answered your questions. The work that he's been doing and will continue to do is very exciting.
As I mentioned, where we are at right now is working with a few Government groups in Nigeria (NEXIM Bank and NIPRD) to work on acquiring the rights to the facility and Nicosan. It's our intention, as Dr. Pandey said, to investigate and work on finding out the effectiveness of Nicosan on Thalassemia as quickly as we can and then to move to get approvals to market the product we were can.
What we are asking is if anyone is willing to write a letter of support for us to contact me at lamontef@yahoo.com. We can use all the support we can get to show them that we are working hard to move forward. The banks are looking to see what we'd do when we get in the door, I want to show them how much we've done outside the door so they can only imagine what we'd do when we are actually inside...
I look forward to hearing from you all and working closely with you. We can all pray that this is beneficial you.
Thanks much!
LaMonte
Andy Battaglia:
Everyone, please do write these letters and show the support you have for this type of research. I do feel there may be some potential for this drug in thalassemia because of its action on the membranes of red blood cells, and should therefore, be thoroughly investigated. Please contact Lamonte with your letters. I feel nothing is more powerful than the words of those directly affected, so please give your support.
Manal:
Definetly we will write and thanks to everyone trying to offer new treatments
manal
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