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Hydroxyurea Therapy in 49 Patients with Major Beta-Thalassemia
T @ r ! Q:
These are really encouraging results. As main concern of thal majors (and specially for me these days) is more blood requirements and decreasing tx gaps with age. I hope we can start soon on HU and get good results.
nice friend:
Hi Opkaram,
i have forward the study to my doctor and .. yeah, i'll definitely ask my doc to my doctor to check if i can give it a try .. result of your daughter r really encouring as 15 day's increas in interval mean's alot for a thall maj .. i will definitely again talk to my doctor abt this .. i will contact you whenever i need ur help and thanx for offering help .. i will contact u if my doc told me to give it a try ....
@ Andy
Thanx ya Andy , for this sharing, its encouraging, ...
@ Tariq
Agree to you buddy , gap between Tx is most imp thing for us (thal maj ) and as u people red my previous posts , that depression was caused bcoze of the shortness of the gaps .. so, its really an important thing for us , from Iron overload aspects too ,,,
Best Regards
umair
Manal:
Hello Umair,
My advice to you is to give it a try (if the doctor agrees ) cause it might work for you cause not all mutations have been studied with the hydroxurea and even it could have different results with two persons with same mutation cause there areother factors in the body that can aid either positivly or negativly.
All you have to do is to check the kidney and liver functions every month until you are sure that it does not affect them and usually doctors give up to 9 months before they judge whether it works for the patient or not
manal
ruchi:
where and in which places this therapy conducted for beta thalassemia major ,is their any place in india
nice friend:
Hi Manal Sis,
i m looking to talk about this to my doctor in my next visit, let's see when i will go to visit next .. my last vist was a few months back mayb in MAY or June ... looking to go again soon .. i will talk to her about this again , i have forward this study to her ... i m hopeful that she will agree to give it a try ..... 9 months wooooo, long time but its okiey .. hope that it will b helpful to increase the intervalls ... thanx ya Sis for taking time to reply, and Welcome ack :) ....
Best Regards
Umair
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