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Hydroxyurea Therapy in 49 Patients with Major Beta-Thalassemia

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Sharmin:
Thanks for posting this Andy,
I hope that patients continue to have good results with fetal hg inducers.  I cannot wait to hear Dr. Perrine talk about her work in NY.  As the clinical trials started in April/09 I wonder if some preliminary results may be available by October.

Zaini,  I have high hopes that a hg inducer will work very well for lil Z - especially hemaquest. 

Cherieann, I am glad to see that it is working well for you:)

Sharmin

Zaini:
Sharmin,

Thanks a lot,i have a few concerns regarding Hydrea,and naturally i am scared of trying something new which might effect Lil Z's growth,so we'll wait for a better form of hb inducer,i am not saying Hydrea isn't good,its working really well for Cherianne,6 weeks of interval at her age is awesome :) .

Zaini.

cherieann:
Thanks Zaini. Yes it is doing well for me.
I haven't noticed any side effects and my haematologist keeps a close eye on my levels.
Maybe thats why I'm doing well, they are monitoring well? :hugfriend

nice friend:
Hi All ,
it will b good for me to try this or i should have to avoid trying any drug like this ??? wat do you say ?? i wana try this and a few times talked abt it to my doc as well , but she wn't to try any drug ( i m using try to bcoze she said that its not proven yet on thal majors ad I wouldn't like to experiment it on you )....  i have forward this study (mentioned above ) to my doc and wil ask her again that if it is safe then i m ready to try ,( i dont know why i m always stay ready to try for anything that seems to b beneficial HAHAHA) .... wat u people think ?? is it safe ?/?? and does it looks safe in my case ???

Regards
Umair

cherieann:
Life is always filled with risks even after it has been proven because no individual is exactly the same. We all react differently. You need to make the decision for yourself.
I recommend your Drs advice for being careful but at the end of the day, your Dr gets to take a break from dealing with Thal where as you will never be able to walk away.
My advice... go with your instinct.
For me, I take my Drs advice or warnings as she explains things but I have the overall choice of whether to trial or not. In NZ I have no one to compare to so I am my own guinea pig.
Now that I have you all, I have more people to get info from before I make choices. hehe
The plus is also I talk aboutwhat you guys are taking and together we choose whether I should trial it as well.
Umair... follow your instinct.

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