Discussion Forums > Thalassemia Major
Question for Andy...
maha:
She actually gets 350ml every 2 weeks? This is by far a huge volume. For her weight of 19 kgs she should be getting 285ml - 300ml every four weeks. Pleasance no doctor suggested me vitamin E or L-carnitine or vitamin D or calcium. I learned all this from the other members here and of course Andy.What supplements do you give her? You should start her on vit e. My son is 4 years old and has been taking 100 IU of natural vitamin E for almost two years now. You could start Manit on 200 IU of natural vit E (d-alpha). Do not use any synthetic brand. Also start her on L-carnitine. If her transfusion intervals can be increased while maintaining a good hb, her hands will also will get pricked less often.
take care
maha
pleasance:
hi maha
like u said that u give so many essential vit and calcium and other things like IP-6 and ginseng honey dailyand B- vitamin daily so can u name all these medicines so that i can buy from a regular medical shop........as i am totally unaware of the same ..........thanx so mch for replying pls lemme know thw doses of these medicines and the names and the time when u give the meds
maha:
I get the vit E and L-carnitine from GNC stores. You should find this in India also. I get ginseng honey from a supermarket here and I order IP-6 online. Both osteocare and a Iron free multivitamin is also available in India.
My son starts his day with asunra. Half hour later he gets his breakfast. I pop in the vitamin E softgel and folic acid in between. He loves to chew it. I give him his L-carnitine soon after breakfast. He comes from school at 1 pm and I give him IP-6 then. Since IP-6 is a capsule I open it and mix it in a little juice as he is still young to swallow a capsule. Half an hour later he takes his lunch. Between 5pm- 6pm ie after he gets up from his nap I give him his second dose of Asunra and half hour later another dose of L-carnitine. I mix the ginseng honey in his milk after dinner. I give him the osteocare and mixavit just before bedtime.
maha
pleasance:
can u name the vit e capsule and may i know the cost of ip-6 as i gues its a hb inducer and how does ginseng honey help....pls letme know
any ways thnx to give ur time and u mailed me thnk u so mch and may i also know wat is the actual role of L- cartinine
thanx
Maha
Zaini:
Hi Manit,
IP6 is not hb inducer,its an anti oxidant which also chelates a little bit of iron from the body,you can find it online at www.puritan.com .
Zaini.
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