Discussion Forums > Thalassemia Major
Question for Andy...
Danniel:
--- Quote from: Dori on March 20, 2011, 09:05:14 AM ---Did we met by chance at the conference of Asociatia Romana A Persoanelor cu Talasemie Major (ARPTM?) held in Sinai in November 2010?
--- End quote ---
I wasn't able to go to Sinaia then.....I didn't know that you went, but you met my friends there!
Thanx for answers! :)
Dori:
Aha, it is still nice. I am sorry you could not made it. We have learnt a lot. I was with a friend who controls the thalassemia department within our organisation. We were the Dutch delegation. Will you be able to join your group to Turkey? I am not sure of they will come btw.
Your health is overall good?
Say hi from me to all! I've learnt a lot. :)
Lo:
Hi Andy,
My son, Jayden, is 4 yrs. Old and he has Beta Thal Major. My husband and I are currently getting him treated at John Hopkins. We have chosen LA children's Hospital for his BMT. Do you think we have made the right choice in choosing that center? I also read that Texas Children's Hospital has done a number of BMTs on Thal major's as well. I just want my son to go to the hospital that has the most experience. Thank you for your time.
Lo
Andy Battaglia:
LA Childrens has one of the top thal centers in the US. I have complete confidence in them. They should be able to provide you with recent success rates on request. In recent years, the better centers are well over a 90% success rate. Check with both centers to compare the numbers of BMT's done for thals and the rate of success for each hospital. With that said, I would choose LA.
Zaini:
Hi Lo,
Good luck with the BMT, :hugfriend keep us posted.
Zaini.
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