Discussion Forums > Thalassemia Major
Question for Andy...
Emby:
then I guess its just wait and see...
Both of the boys are not that bothered with 3 times a day over once daily....what does matter is effectiveness plus safety :yes.
My younger son had to take Exjade because of liver iron increasing with ferritin already quite low and I'm praying, praying, praying,
God willing inshaAllah, that it works for him.
Pratik:
--- Quote from: Emby on January 08, 2013, 01:56:40 AM ---then I guess its just wait and see...
Both of the boys are not that bothered with 3 times a day over once daily....what does matter is effectiveness plus safety :yes.
My younger son had to take Exjade because of liver iron increasing with ferritin already quite low and I'm praying, praying, praying,
God willing inshaAllah, that it works for him.
--- End quote ---
Oh your both boys are thal major? I pray for their good will. :)
-P.
Emby:
Pratik...they are 2 incredible blessings sent to us by Allah the Most Merciful. My husband and I were given the best 2 boys ever.
Emby:
Hello Andy,
My younger Son is doing well with Exjade....though we don't know what his ferritin reading is like since he started (400 at that time).
He needs to take it to reduce liver iron. I would like to know that with split dose would this make the ferritin reduce more when the point is not to reduce the ferritin then would a single dose help with the liver iron and maintain a good ferritin level?
A thought just came when typing this...if liver iron levels is steadily going up there may be other organs with increased iron that has not been seen yet. May God protect them from harm. Ameen.
Andy Battaglia:
The ultimate goal of chelation is 24/7 coverage. This is because iron is constantly being released from the red blood cells that are being eliminated from the patient's body. When Exjade is taken only once per day, there will always be gaps in the coverage, creating the opportunity for iron to build in tissue. Even at low ferritin levels, the best way to keep the organs clean is by chelating 24 hours a day. Once the ferritin drops below 300, adjustments to the total amount of chelation drug used are made, but the technique does not need to be altered. There is some correlation between liver and pancreatic iron, but the connection to cardiac iron levels is not so clear. The best way to keep all organs clean is by ensuring there is always an active chelator in the body.
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