Discussion Forums > Thalassemia Major
Question for Andy...
Andy Battaglia:
I don't know if it is the entire cause, but I suspect a combination of Exjade and dehydration is at fault. The effects of Exjade on the kidneys are well known. Sufficient hydration is needed for all patients on the drug, so that creatinine can be properly cleared from the body and not build in the muscles, where the noted pain has been observed.
Dharmesh:
What does it mean pancreas level of 300??
Is it T2*Score of MRI?
I have heard that pancreatic iron can be assessed by MRI
Emby:
Pancreas AMYLASE 0-137 U/L normal
They say the cause of it is Exjade.
Andy Battaglia:
Emby,
Between the muscle pain which shows some evidence of kidney problems and the pancreatic level, it may be necessary to cease Exjade permanently. Raised blood levels of Amylase are mentioned over and over in case studies of patients using Exjade and having issues. Dehydration is also mentioned over and over.
Emby:
Yes that is how I feel but H's Dr said we might start him back on the Exjade at alower level...but I have been clear to the doc about what I feel about that....
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