Discussion Forums > Thalassemia Major
Question for Andy...
Emby:
Lena....with H's ferritin at about 300 now, and given what has happened with the Exjade, what do you think would be best for him in terms of chelation? He is in recovery and may take a while so might not take any chelators for a couple of weeks.
Lena:
Emby,
we had a seminar in our Thal Unit yesterday and doctors from other Units, too, were invited. Normal ferritin level was said by all to be below 200 and LIC<3 (although our doctor says 1,5), T2* heart and liver to be >20. If you have not reached this level, you are not to slow down at all. Hepatologists said that whether you have Hepatitis C or not, if your liver iron is above normal you are at risk to get liver cancer in a number of years. This is a possibility to be considered. These are the most important statements I heard yesterday.
So, as you realise one is not to relax. My guess for H is to proceed with a combination therapy, ferriprox and desferal together. Has he done an MRI? could you care to write the T2* score for heart and liver as well as the LIC score?
Emby:
Sorry..what is LIC?
Andy Battaglia:
Liver iron concentration.
Emby:
Thank you Andy
2012: T2* Heart 58ms
T2* Liver 2.4ms (2010 was 2.1ms)
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