Discussion Forums > Thalassemia Major

Question for Andy...

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Emby:
Salaam Umair,

They are both very well, Alhumdollilah. About these pains they have only once in a while, though it is quite severe when it does happen, I need to ask their Doc, when we next meet, to have it investigated and InshaAllah take it from there.
Praying that you are keeping well yourself brother Umair....may Allah keep you healthy, happy and content.. 

nice friend:
Emby Sis,
Ameen ... always praying the same for them :) ... praying that they r not having anything serious ...

Best Regards
Take Care
Umair

Emby:
Hello Andy,

In need of your opinion...
Our oldest needs to to use the loo more often than he is used to..[pass water]. He is used to going twice or 3 times a day.  Two months ago he was told that he had Water Infection and was prescribed medication which he took over a period of 3 days.  He had another urine test a week or two after because he is still going between 6-8 times a day.  The test came back as normal.
What do you suppose could be causing this?  He does not drink so much throuout the day.  It is annoying him as the urge to go is sometimes very sudden and when he does go it is a normal amount.  His blood test are within the normal range.  He has an appointment with the GP next week.....I told him that I'll ask Andy about this.  They all know you by your photo...I have asked him to post any concerns on this forum himself....hoping he will...soon.

Emby
   

Andy Battaglia:
Hi Emby,

The first thing I have to say is a normal urination schedule of only 2-3 times daily is not adequate. This means he is not drinking enough fluids on a regular basis, and this is something that needs to be corrected. 6-8 times per day is considered normal. I think with thals, fluid intake is critical, as there are many toxins in the body from the regular breakdown of red blood cells and the oxidative stresses that accompany thalassemia. In addition, when you are regularly on medication, especially chelators, plenty of fluids should be taken daily. Exjade does increase both thirst and urination, so this may be a factor.

As far as his current situation, is he experiencing any pain or burning with urination or any abnormal discoloration of the urine? Any pain in the kidney area? If there is no sign of infection in testing, and the doctor may choose to test again, and there is no reasonable explanation for the frequent urination, his sugar level will probably be investigated. However, if this was a problem, he would also be experiencing excessive thirst.

Please review the fluid intake of both boys. It is very important for anyone to get adequate hydration, but with the use of chelators, it becomes even more important.

Emby:
Thank you Andy for your reply.
He does not have any of the symptons which you ask about.  As for his fluid intake it is about 5-6 mugs full daily....dunno if that is enough....you are probably right...maybe now his body is telling him 'i'm gonna go 6/8 times..and thats that!'. Just reminding you that they are both on ferriprox alone at the moment and he is only taking 3 tabs 3xdaily 5 days per week [ferritin 100].
Thanks for your advice...will encourage them to drink more.   

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