Discussion Forums > Thalassemia Major

Question for Andy...

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Rehman:
thanks a lot .

Emby:
Dear Andy,

Regarding copper supplements BB and LB have been taking half of 2mg tablets now every day. I still need to know how much to give them, how is it worked out?

Both brothers as you know are on Ferriprox so should they continue to take Ascorbic Acid 100mg daily when taking Ferriprox?

I would like to know that if, as LB is, low in Vitamin D, could this cause yellowing in the white of the eye? He has recently started taking Vit D solution again.

Hope you are keeping well yourself. 
These may be little issues but i thank God you are there for us.

Andy Battaglia:
Hi Emby,

I would suggest keeping them on the current dose of copper until the doctor says it's time to test again and then adjust the dose if needed. Small amounts of vitamin C are safe. It's best if not taken with meals, as to minimize any added iron absorption from food. I think vitamin D is indicated in thal and especially when you see symptoms like yellow eyes. This is a sign of jaundice which is related to the breakdown of red blood cells. You also will usually see a high bilirubin level when the eyes are yellow. Vitamin D (1000-5000 IU daily), B complex 100 and magnesium (500-750 mg daily) may help to slow this breakdown, leading to less bilirubin development. Vitamin D's importance has only recently begun to be realized and its importance in thalassemia has led to doses of 50,000 IU at once, to correct deficiency. Testing for D is simple. A value below 30 needs correction and we may eventually learn that 30 is low.

Emby:
Thank you Andy,

LB's bilirubin was quite high last month ans so was his ALT. This month ALT is normal and bilirubin levels are lower but not quite normal. His Vitamin D was 6.1 (!). I would like VIT D checks to be routine here but it isn't. Takes time for results to come and to get med for it. It's such a headache cos we keep having to chase everything up when the Dr.'s are supposed to be on top of it all  :(!

jia:
My son Jia has his ferri scan done at 4. Now he is 7 and hasn't had another one done yet. The ferri scan result was very good the last time and the doctor decided not to do another scan in 1 year. Maybe he should go for a scan soon now that it has been so many year's lapse. His ferritin level is now around 1300. The doctor here doesn't want the ferritin level to drop much past 800. She said it can affect growth if over chelated. I don't have many older thalassemia persons to consult here. Only 4 kids in Perth with thalassemia major.

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