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(Sallman's dream ) Thalassemia free Pakistan

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Zaini:
Thank you Lena  :hugfriend

Manal:

--- Quote --- Andy is right about needing an organised effort, a programme from religions or states everywhere in order to mobilise individuals.
--- End quote ---

Though we lately have this program and before marriage you are supposed to admit a report saying that there is no risk of genetic diseases. But because there is no awarness by the people themselves, they find there way of forgering this report by any means saying that they are clear without going through these tests. So it is important to educate people of how important these tests are in the first place

manal

Lena:

--- Quote from: Manal on December 02, 2009, 10:50:47 AM ---So it is important to educate people of how important these tests are in the first place


--- End quote ---

That's true, educating people should be top priority for all governments. And this shouldn't be too difficult with tv spots and everything in that direction.But how many countries are there, even as we speak, that promote it? Few, I'm afraid.

Lena.

Andy Battaglia:
Lena,

I have long been a proponent of tv spots to help spread awareness and I was even interviewed twice for television in the Maldives, where I took full advantage of the opportunity to educate the public. I have long had an idea for public service spots that would show a thal patient's normal life, education, career, marriage, kids, community activities, etc. and then announce that the person also has thalassemia, in order to show exactly how normal thals and their lives can be in today's world. I think this would surely remove some of the stigma that many people see attached to thalassemia. I don't think this would be costly to produce and would only require some free public service air time on television in order to get the message across that thals have normal lives and are normal people. This is an important step in acceptance in cultures where the stigma leaves thals feeling like outcasts who are unwanted. People will not get tested in this environment until the stigma has been neutralized, and changing the way people view thals has to be part of this. It will be much easier to convince people to be tested if they don't have these preconceived notions about thalassemia that result in thal being something people hide. A campaign like this would serve thals in many ways from removing the stigma to encouraging people to give blood to allowing their child to marry a thalassemic. Acceptance of testing will be much easier when this whole stigma concept is vanquished.

I have a script and full ideas for the visuals for such a public service spot. This is something that again, I feel TIF is in position to accomplish if we can only get them interested. It would be simple enough to produce the ad and put it on a dvd to be distributed wherever needed. This is a relatively low cost idea and I think TIF has to start using the media to advance its goals. Can this be done?

Lena:

--- Quote from: Andy on December 02, 2009, 03:34:34 PM ---It will be much easier to convince people to be tested if they don't have these preconceived notions about thalassemia that result in thal being something people hide.

--- End quote ---

I totally agree with that, Andy.

Really, has TIF any idea about this site? Have you talked to anyone about it ever?

Lena.

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