Discussion Forums > Thalassemia Major

losing someone to thal major heart failure

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sydneygirl:
hi,recently my brother has passed away he had thalassemia major and died of heart failure.I was wondering if anyone else has gone through this and knows how im feeling,would love the support.Please post me on here if gone through similar experince.

Andy Battaglia:
Hi,

I am very sorry to hear about your brother. My condolences to you and your family.

Unfortunately, heart failure is the leading cause of death in thalassemics throughout the world. I am in this group because my best friend, Lisa started it. She died from congestive heart failure in April, 2004. My friend Vittey from Maldives also recently died from the same cause. It is the most serious problem confronting thal health and there are no easy answers. More research needs to be done because it is not only iron overload causing these problems. 95% of thal majors have weakening in the left ventricle and this is not all due to iron overload. It is suspected that frequent transfusions play a role but answers need to be found if we are going to give thals a full life.

Irishcrm:
I am very sorry to hear about your loss.  If you need someone to talk to, feel free to email me.  I know it's very hard to deal with. 

Hoping you are doing ok.

Mary

§ãJ¡Ð ساجد:
Low Hb and iron overload causes the heart to beat harder to keep up the oxygen demand of body from blood. Resulting in one tired and weak organ.

My condolences to everyone who lost their friend/family member this way  :(

sydneygirl:
thanks everyone for your condolences,it is really difficult as you all said and because my brother just passed away its very new and deeply upsetting.He died from heart failure and kidney failure also.I just pray everyone with thal looks after themselves so no more precious lives are lost!
I also have thal major myself so i know how hard it is for all us thals.

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