Discussion Forums > Thalassemia Major

Little Ari

<< < (9/19) > >>

Cari:
Hello all,

Ari is doing well thank God.  He finally has color in his face and more energy than before.  He was not eating well but he is building back up now.  Thank you for all your good wishes and prayers. 

His HG is at 9.7 now and we will go back next week to recheck and make sure it is not dropping. 

Ari did so well during the transfusion.  He is truly wonderful and I love him more and more every day.  I couldn't have asked for anything more and I know that I made the right choice a few months back. I wish there was a more positive outlook in the internet on thal....maybe then parents wouldn't be so scared when faced with a decision like that.   

Thank you to all of you who got us to this point.  I get stronger every day by reading your stories.

I'll keep you posted as we go along.  Thanks!!

Andy Battaglia:
Hi Carisma,

I am happy to hear that Ari handled the transfusion well. It's often the parents who have a harder time dealing with this than the kids.

I am very much conscious of what most of the internet will tell new parents bout thalassemia and have mad great efforts to show parents what the current outlook for thals is, so they do not feel so desperate upon learning their child has thal.  I think this is one of our most important roles as a group, and something I took greatly into consideration when doing the posts "What is Thalassemia and How is it Treated?" I hope we can be that island of hope on the internet that parents can find and get an accurate view of the prospects for a newborn thal. Your words tell me we are doing a good job at that.

Zaini:
Carisma,

I am so happy to hear Ari did well in transfusion and you are seeing positive changes in him :hugfriend i agree with you about outdated info about thal on internet,but i am glad that you found out whats the truth :yes.

Good luck :goodluck

Zaini.

Lena:
Hi Carisma,


young thals are so lucky nowadays with new med treatments and so many well-informed thal experts! I really feel a little jealous that I was born 48 years ago! Have no fear! As long as you maintain Ari's hb above 10 and his ferritin near 100 you have nothing to worry about. Your son will have a normal  lifespan and outlive many people considered "healthy".

Best wishes,
Lena.

Keep Smiling:
Good news........
Abbas

Navigation

[0] Message Index

[#] Next page

[*] Previous page