Discussion Forums > Thalassemia Major

Little Ari

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Sharmin:
Charisma,

I hope that things are going well with Ari.  It was nice catching up with you on the phone the other day, it had been a while.  I had wanted to call you back but lil A got really sick after.  I hope everything is going well:)  

Lots of hugs to the little guy,

Love Sharmin

gayatri:
Hi

My daughter Ms gayaytri m bajaj is thal maor 15 yrs old ,we had gvn rituxmax treatmnt two years back to controll antibodies , her requirmnt fr blood is increased once in week again ,pls suggest ,

Regards

Manish s bajaj
9987522211

Dori:
Hey Gayatri.
Your daughter gets 1 unit of blood every week? I did not know antibodies were treated with antibodies. Did it work? What do you want to know from us exactly?
Warm wishes, D

Sharmin:
Manish,

The best treatment for your daughter is to give her ritux again - this time one dose instead of the usual 4 should suffice.  This process may need to be repeated once or twice over the next year or two.  From there you can see how things are going. 

How are Gayatri's ferritin levels?

Sharmin

aus:
My son has picked up the Kell group antibody sometime in the last year. Now he is in more trouble. He has to have that type of antibody in the blood. This has limited his donours greatly. I am carrying his antibody card. Because of my lack of understanding, I assume that he will have to have blood with this type of antibody for the rest of his life. There are currently a couple of donours with this type of antibody which match his blood type. Not a comforting thought at all.

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