Discussion Forums > Thalassemia Major
Little Ari
Cari:
Little ari is doing good, we just had another little one last week and he is adjusting to his new baby brother beautifully! ari is growing up fast and currently transfused every 3 to 4.weeks. We have not discussed treatment for him at this time as we would like the options out to mature to putting him through any. Things are not always smooth but he is as normal as any child and makes me proud every day. how old is your tdaughter van?
van:
Congratulations!!
My daughter is 18 months older.
Dori:
Congratiulations with your new son and Ari's little brother. <3
Cari:
Hi everyone, hope you have had a very happy holiday and that you are all doing well!
I wanted to touch base and see if you could help me with some issues we r having. Ari has been on exjade since september and they informed us in october that his liver enzymes were elevated. They took him off exjade for a month in november and after two weeks of being on it his levels were back up...
Alkaline phosphate 242
Alaline amino trans..620.
Asperate amino trans. 97
I think the last two are ALT / AST
They have him in exjade until thursday and they will check again. Any one experience something like this where exjade wasn't fitting? I am concerned because the doctor hadn't heard of any other oral chelator.
Dori:
Yes İ have had this too. as long as it is not like 5x higher you should not worry too much. i would advise an other try out and maybe with a lower dose. one's body need to adjust to it. Also it is recommend to drink a lot of water. whrn that happend to me İ stopped for three weeks. Maybe this helps?
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