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2. PanEuropean conference

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Andy Battaglia:
The conferences that TIF runs every few years do have separate patient and parent sessions in addition to the medical sessions. These presentations are done so that the topics are easily understood. Many even feature some of the same doctors, but with a talk directed at those not in the medical field. These sessions go on at the same time as the medical presentations, so often I have to choose between the two. I usually end up being one of the few laymen in the medical sessions. At the Singapore conference, most patients and parents were not allowed into the medical sessions, which really was a terrible decision by their government. I will note that at the recent conference in NYC, patients, parents and interested parties were specifically invited to attend the medical presentations. I believe this is how it always should be and I will not attend another conference that prevents regular people from attending medical presentations. There is no valid explanation or reason for depriving people of information about their health.

Dori:
Ahhh I remember THE elevator! When I grabbed the mic I was almost going to ask of the Danish delegate was there. Do you think we were all etnical dutchies? The food was horrible btw - but you missed my performance Will upload Lucs later. Must run through the house now.
Cu in Antalya in 2011 ;)
hmmm i didn't press post yet. I stood by the girl when she was in conversation and tried to read her card. Weird! (there were only two with a scarf, yes?)

Lena:
Was there anything  interesting going on in the PanEuropean conference? Any medical announcements that we should be aware of?

Lena.

Canadian_Family:
Lena,

You are always to the point, I like this quality.

Cheers.

Ironman:

--- Quote from: Lena on March 17, 2010, 04:56:53 PM ---Was there anything  interesting going on in the PanEuropean conference? Any medical announcements that we should be aware of?

Lena.

--- End quote ---

Well I dont know whats interesting, and which announcements that you already know of.

What I found interesting personally, is about Gene therapy.
According to one of the speakers(can't remember who), the clinical trials for thal, will begin in 2012.

Sounds like good news to me!

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