Discussion Forums > Diet, Nutrition and Supplements

The role of nutrients and the effects of nutrient deficiencies in thalassemia

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Sharmin:
I have uploaded some slides from the New York Conference (please see Gallery - reference pictures). 

The first slide outlines the role of zinc in bone density.  The second lists various vitamin deficiencies and their effect on immunity.  

From the conference I have learned that there is little doubt that vitamin supplements are essential in preventing many of the complications in thalassemia - how much and how to supplement may need to be fine tuned.  

For my son, I have started to split his vitamin supplements so that he takes them twice a day.  This has made it much easier on his stomach.  

Sharmin

Lena:

 You are right, Sharmin. Not only easier on the stomach but also coverage on a 24hour basis. That means  vitamins in our bodies all day long, which is essential.

Lena.

Zaini:
Hmmm,I'll have to work that out with Lil Z .

Zaini.

Sharmin:
I am giving lil A many supplements - in addition to 1000mg of exjade each night.  His stomach hurts quite a bit.  Today I gave him the second half of his dose in the evening - and he threw it up just before his hockey game.  I am going to have to find a better way to give him his supplements.  Perhaps even to give him a break for a week or so from some of them.  Maybe I will only give him the vit D, B complex and cal/mag for the next week. 

I think it is making him quite miserable having a tummy ache all of the time. 

Sharmin

Lena:

 Stomach problems are to be  avoided. If his stomach is aching all the time, it will lead to permanent stomach trouble. That's not good.

Lena.

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