Discussion Forums > Announcements
6th National Thalassaemia Conference and Workshops
Lena:
Zaini,
I am very happy that thals all over can find hope in this site. When I was a member of TIF Board of Directors, some ten years ago, we went to Amman, Jordan, to hold a Board meeting there and at the same time to talk to some local associations and offer our help. On the last day there, we, the thals-members of the Board of Directors gathered and talked in front of say 300-400 people, Arab doctors and patients. The feeling I got there, was that each and every thal in the crowd was looking at us trying to find hope in our faces. There were thals and parents and doctors and nurses all related to thalassemia. It was very touching and we did our best to show them that their life is not over, that there is future, there is hope.
That is exactly what one can find in this site: Hope. And that is what you describe when talking about thals from Pakistan and I would add from all over and especially from countries where people are not yet convinced that thal is not a fatal disease.
That is why this site reminds me of that day I lived in Amman. You see, I get the same feeling.
Let's try to keep this site going. It is a window of hope to every thal.
Lena.
Zaini:
Lena,
I can't even imagine where i would be with out this forum,it has given me so much knowledge that now when i talk the most arrogant doctor in the hospital does a double take and try to listen to me :rotfl and being informed is really necessary,we all know that.
Zaini.
Waleed:
--- Quote from: Zaini on December 07, 2009, 02:15:54 PM ---Lena,
I can't even imagine where i would be with out this forum,it has given me so much knowledge that now when i talk the most arrogant doctor in the hospital does a double take and try to listen to me :rotfl and being informed is really necessary,we all know that.
Zaini.
--- End quote ---
InshaAllah ur child will succeed ... just control iron ... raise her mentally strong, educate her to our beliefs and worldly knowledge . InshaALLAh she'll succeed here and most importantly HereAfter .
I'll write sumday about docs and nurses attitude ... what actually is and what actually shud b ...a long harsh words i want to put on them ..but right now im watching indian SONY TV CID
Keep Smiling:
waleed u r definitely super normal............
Keep Smiling:
waleed and zaini sis,
in our society being detected as thalassemic is very alarming, i had to bear the same feeling a month ago when najaf was diagonised, every one (outsiders) had the feeling that there was no future of najaf, and she would be lucky if she survived till teenage........ they gave the examples of other thalassemics....there attitude was as though they r condoling us
every time on phone and whenever i visited home i was trying to convince my family that INSHA ALLAH najaf will live a normal life.........
and as far as doctor's behaviour is concerned i just experienced it last week.......
we visited Children Hospital Lahore and i had a very sad feeling that no one is ready to hear us, they just kept on referring to other doctors, they didnt show any interest,
the doctors very arrogant and not ready to answer my questions.........
and the worst of all, the most senior doctor told us that there is no cure except transfusions and he said there was no need to come again to me just keep on transfusing her. no medicine.... no special dietry advice........nothing at all..........
he didnt even said a single word of hope for us............
i dont know what king of experience waleed has but it was my worst......
Abbas
Navigation
[0] Message Index
[#] Next page
[*] Previous page
Go to full version